Dealing With Temporality in Patients With Life-Limiting Disease: An International Qualitative Study.

Autor:	Joshi M; Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany., Ásgeirsdóttir GH; Palliative Care Unit, Landspitali - The National University Hospital of Iceland, Reykjavik, Iceland., Bakan M; University Clinic of Pulmonary and Allergic Diseases Golnik, Golnik, Slovenia., Kodba Čeh H; University Clinic of Pulmonary and Allergic Diseases Golnik, Golnik, Slovenia., Haugen DRF; Regional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway.; Department of Clinical Medicine K1, University of Bergen, Bergen, Norway., Lunder U; University Clinic of Pulmonary and Allergic Diseases Golnik, Golnik, Slovenia., Víbora Martín E; CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Málaga, Spain., Morris B; Palliative Care Unit, University of Liverpool, Liverpool, UK., Rasmussen BH; Institute for Palliative Care, Region Skane and Lund University, Lund, Sweden.; Department of Health Sciences, Lund University, Lund, Sweden., Romarheim E; Regional Centre of Excellence for Palliative Care, Western Norway, Haukeland University Hospital, Bergen, Norway., Tripodoro V; Instituto Pallium Latinoamérica, Buenos Aires, Argentina.; Atlantes, Global Observatory of Palliative Care, University of Navarra, Pamplona, Spain., van der Heide A; Department of Public Health, Erasmus University Medical Center, Rotterdam, Netherlands., Veloso V; Institute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina., Yildiz B; Department of Public Health, Erasmus University Medical Center, Rotterdam, Netherlands., Zambrano S; Department of Oncology, University Center for Palliative Care, Inselspital, Bern University Hospital, Bern, Switzerland.; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland., Strupp J; Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany., Voltz R; Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.; Faculty of Medicine and University Hospital, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf (CIO ABCD), University of Cologne, Cologne, Germany.; Faculty of Medicine and University Hospital, Center for Health Services Research, University of Cologne, Cologne, Germany.
Jazyk:	angličtina
Zdroj:	Qualitative health research [Qual Health Res] 2024 Aug 26, pp. 10497323241263751. Date of Electronic Publication: 2024 Aug 26.
DOI:	10.1177/10497323241263751
Abstrakt:	The prospect of death influences people's thoughts about and how they deal with their remaining time. We aimed to understand whether patients with progressive, life-limiting diseases are oriented in the past, present, or future and how they deal with temporality. We conducted 57 in-depth interviews with end-of-life patients in 10 countries using thematic analysis at three levels (i.e., locally in three countries, with codes shared in the three-country subgroup, and in all 10 countries with a codebook that we developed). We found that the patients' thoughts were oriented toward all three time levels (i.e., past, present, and future). Complementing these levels, we identified another, namely, the future after death. Each time level included patients actively and passively dealing with their thoughts. Past themes were remorse and regret , nostalgia , and coming to terms with past choices ; present themes were feeling grateful for being alive , a time for farewells , and living for the day ; future themes were worries about the future , to miss out , hope , ideas about death and dying , and planning the near future ; and future after death themes were not being there , worries about loved ones , and preparations for a future after death . A changed view on lifetime and avoidance of thinking about a certain time level related to several time levels, while desire to die fluctuated between levels and between acting on and feeling about it. Living for the day, worries about the future , and worries about the well-being of loved ones were common themes in all countries. Competing Interests: Declaration of Conflicting InterestsThe authors declare no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Databáze:	MEDLINE
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