Exploring the Parental Perspectives and Experiences With the Use of a Home Mechanical Insufflation-Exsufflation Device.
| Autor: | Jarock C; IWK Health Centre, Halifax, Nova Scotia, Canada. Carolyn.jarock@iwk.nshealth.ca., Sheriko J; Department of Pediatrics, Medicine, Dalhousie University, Rehabilitation Services, IWK Health, Halifax, Nova Scotia, Canada., Hurtubise K; CanChild Centre for Childhood Disability Research, School of Rehabilitation Sciences, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada. |
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| Jazyk: | angličtina |
| Zdroj: | Respiratory care [Respir Care] 2024 Aug 20. Date of Electronic Publication: 2024 Aug 20. |
| DOI: | 10.4187/respcare.11689 |
| Abstrakt: | Background: A mechanical insufflation-exsufflation (MI-E) device is a commonly used tool for airway clearance in children with an ineffective cough. Whereas the device has been shown to have multiple benefits, limited evidence exists regarding parents' experiences with its home use in the Canadian context. This study's objective was to explore the perspectives and experiences of parents who receive service through the IWK Health Centre and use an MI-E device at home with their child. Methods: The study used an interpretive description design. Semi-structured interviews, conducted with 9 participants, were audio recorded and transcribed verbatim. Transcripts were analyzed using a reflective thematic process. Results: Seven mothers and 2 fathers were interviewed. Following analysis, 3 themes were identified: (1) Learning about the MI-E device described participants' journey from becoming aware of the device to acquiring knowledge and skills about its use; (2) using the device detailed the integral role the MI-E device played in their lives, including decisions around use, and parental role; and (3) changing lives outlined the physical, emotional, and social benefits the device provided to the child and their family. Conclusions: Participants provided detailed descriptions of their journey from learning to integrating the MI-E device into their child's daily routine and family life. Its multiple associated benefits improved the child's and their family's quality of life. However, better education on its use was highlighted as a need for both parents and the health care professionals who work with them. (Copyright © 2024 by Daedalus Enterprises.) |
| Databáze: | MEDLINE |
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