Interventions to support young adults and families with the healthcare transition between paediatric and adult nephrology health services: A systematic scoping review.

Autor: Kinch M; School of Nursing, Midwifery & Health Systems, University College Dublin, Ireland; University College Dublin Centre for Interdisciplinary Research, Education & Innovation in Health Systems (IRIS Centre), Ireland. Electronic address: melissa.kinch@ucdconnect.ie., Kroll T; School of Nursing, Midwifery & Health Systems, University College Dublin, Ireland; University College Dublin Centre for Interdisciplinary Research, Education & Innovation in Health Systems (IRIS Centre), Ireland., Buckle N; School of Nursing, Midwifery & Health Systems, University College Dublin, Ireland., Somanadhan S; School of Nursing, Midwifery & Health Systems, University College Dublin, Ireland; University College Dublin Centre for Interdisciplinary Research, Education & Innovation in Health Systems (IRIS Centre), Ireland.
Jazyk: angličtina
Zdroj: Journal of pediatric nursing [J Pediatr Nurs] 2024 Sep-Oct; Vol. 78, pp. e346-e363. Date of Electronic Publication: 2024 Aug 16.
DOI: 10.1016/j.pedn.2024.07.026
Abstrakt: Background: Healthcare transition can be challenging for young people and families living with chronic kidney conditions, including those with rare renal disorders who often have multi-systemic conditions, those who have undergone kidney transplantation, and those who face intense treatments like dialysis. Comprehensive, holistic healthcare transition interventions are required, encompassing physical, psychosocial, sexual, educational and vocational support.
Aim: This manuscript presents a systematic scoping review synthesising the healthcare transition interventions to support youth and families within nephrology services.
Methods: This review followed Arksey and O'Malley's five-stage framework, updated by Levac, Colquhoun and O'Brien and the Joanna Briggs Institute. Six databases were systematically searched: CINAHL Plus with Full Text, Embase, PsycINFO, Web of Science, PubMed, and the Applied Social Sciences Index and Abstracts (ASSIA), locating 12,662 records. Following a systematic screening process, 28 articles met the inclusion criteria. Results were analysed systematically and presented using the PAGER framework developed by Bradbury-Jones et al. (2022).
Results: Various interventions were sourced. Three broad patterns emerged: 1. Contextual Factors, e.g. cultural differences between paediatric and adult services; 2. Major Intervention Components, e.g. parental/familial/peer-to-peer support, and 3. Personal factors, e.g., self-management ability.
Conclusion: Few interventions are available to support youth with rare renal disorders, specifically. Future research must be directed at this cohort. Healthcare transition timing remains hotly contested, with additional guidance required to support decision-making. Finally, limited interventions have been evaluated for practice.
Implications: This review has provided various considerations/recommendations that should be taken into account when designing, implementing or evaluating future healthcare transition supports.
Competing Interests: Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Authors. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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