"I feel like I'm being talked to like an equal": Diabetes language matters to adults with diabetes, a mixed-methods study.

Autor: Litterbach E; School of Psychology, Deakin University, Geelong, Victoria, Australia.; The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Carlton, Victoria, Australia.; Institute for Health Transformation, Deakin University, Geelong, Victoria, Australia., Holmes-Truscott E; School of Psychology, Deakin University, Geelong, Victoria, Australia.; The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Carlton, Victoria, Australia.; Institute for Health Transformation, Deakin University, Geelong, Victoria, Australia.; Australian Centre for Accelerating Diabetes Innovations, Melbourne Medical School, University of Melbourne, Melbourne, Victoria, Australia., Gray S; School of Psychology, Deakin University, Geelong, Victoria, Australia.; The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Carlton, Victoria, Australia., Halliday J; School of Psychology, Deakin University, Geelong, Victoria, Australia.; The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Carlton, Victoria, Australia.; Institute for Health Transformation, Deakin University, Geelong, Victoria, Australia., Scibilia R; Breakthrough T1D, New York, USA., Skinner T; School of Psychology, Deakin University, Geelong, Victoria, Australia.; The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Carlton, Victoria, Australia.; Department of Psychology, University of Copenhagen, Copenhagen, Denmark., Speight J; School of Psychology, Deakin University, Geelong, Victoria, Australia.; The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Carlton, Victoria, Australia.; Institute for Health Transformation, Deakin University, Geelong, Victoria, Australia.
Jazyk: angličtina
Zdroj: Diabetic medicine : a journal of the British Diabetic Association [Diabet Med] 2024 Dec; Vol. 41 (12), pp. e15424. Date of Electronic Publication: 2024 Aug 16.
DOI: 10.1111/dme.15424
Abstrakt: Aim: To explore reactions to and preferences for words/phrases used in communications about diabetes among adults with diabetes and parents of children with diabetes.
Methods: Eligible adults (aged 18+ years) living with diabetes, or parenting a child with diabetes, were recruited via social media to complete an online cross-sectional, mixed-methods survey. Study-specific items were used to examine 22 commonly used diabetes words/phrases in terms of participants' cognitive perceptions ('helpful', 'respectful', 'accurate', 'harmful', 'judgmental' and 'inaccurate') and emotional reactions ('optimistic', 'motivated', 'supported', 'understood', 'offended', 'blamed', 'distressed' and 'angry'). Open-ended questions invited further feedback on (non-)preferred language and its impact(s). Data were analysed using descriptive statistics and inductive thematic analysis.
Results: Participants (N = 865) included adults with diabetes (type 1: n = 519; type 2: n = 180, other types: n = 48) and parents of children with diabetes (n = 118). Words/phrases most commonly associated with negative perceptions/emotional responses were 'non-compliant' (60% judgmental; 47% felt blamed) and '…good/bad' (54% judgmental; 43% blamed). Positive perceptions were reported for 'managing diabetes' (73% helpful, 47% felt understood), 'person with diabetes' (72% respectful; 49% understood), '…within/outside target range' (60% helpful, 44% understood), and 'condition' (58% respectful; 43% understood). Participants' qualitative responses illuminated perceptions, experiences and impacts across five themes: (1) accuracy and simplicity; (2) identity; (3) blame, judgement and stigma; (4) respect and trust and; (5) support, hope and feeling understood. Themes were consistent across diabetes types.
Conclusions: These findings provide novel evidence into (non-)preferred, and potential (negative and positive) impacts of, commonly used diabetes words/phrases, supporting the international #LanguageMatters movement.
(© 2024 The Author(s). Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK.)
Databáze: MEDLINE
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