A standardized clinical database for research in Chagas disease: The NHEPACHA network.

Autor: González Martínez A; Departamento de Investigación, Salvando Latidos A.C., Guadalajara, Mexico.; Departamento de Investigación, Instituto Cardiovascular de Mínima Invasión (ICMI), Guadalajara, Mexico., Losada-Galván I; Barcelona Institute for Global Health (ISGlobal), Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.; Hospital Universitario 12 de Octubre, Madrid, Spain., Gabaldón-Figueira JC; Barcelona Institute for Global Health (ISGlobal), Hospital Clínic-Universitat de Barcelona, Barcelona, Spain., Martínez-Peinado N; Barcelona Institute for Global Health (ISGlobal), Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.; Secció de Parasitologia, Departament de Biologia, Sanitat i Medi Ambient, Facultat de Farmàcia i Ciències de l'Alimentació, Universitat de Barcelona, Barcelona, Spain., Saraiva RM; Evandro Chagas National Institute of Infectious Diseases, Fundação Oswaldo Cruz, Rio de Janeiro, Brasil., Fernández ML; Instituto Nacional de Parasitología Dr M. Fatala Chabén, Administración Nacional de Laboratorios e Institutos de Salud Dr C. Malbrán, Ministerio de Salud, Buenos Aires, Argentina., Ramsey JM; Centro Regional de Investigación en Salud Pública (CRISP), Instituto Nacional de Salud Pública (INSP), Tapachula, Chiapas, México., Noya-González O; Cátedra de Parasitología, Escuela 'Luís Razetti' Facultad de Medicina, Universidad Central de Venezuela, Caracas, Venezuela.; Instituto de Medicina Tropical, Facultad de Medicina, Universidad Central de Venezuela, Caracas, Venezuela.; Centro para Estudios Sobre Malaria, Instituto de Altos Estudios 'Dr. Arnoldo Gabaldón', Ministerio del Poder Popular para la Salud (MPPS), Caracas, Venezuela., Alarcón de Noya B; Instituto de Medicina Tropical, Facultad de Medicina, Universidad Central de Venezuela, Caracas, Venezuela., Schijman AG; Laboratorio de Biología Molecular de la Enfermedad de Chagas, Instituto de Investigaciones en Ingeniería Genética y Biología Molecular 'Dr. Héctor N. Torres'-INGEBI-CONICET, Buenos Aires, Argentina., Berón S; Fundación Mundo Sano, Buenos Aires, Argentina., Abril M; Fundación Mundo Sano, Buenos Aires, Argentina., Gascón J; Barcelona Institute for Global Health (ISGlobal), Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.; CIBER de Enfermedades Infecciosas, Instituto de Salud Carlos III (CIBERINFEC, ISCIII), Madrid, Spain., Sosa-Estani S; Drugs for Neglected Diseases Initiative (DNDi), Geneva, Switzerland.; Centro de Investigaciones Epidemiológicas y Salud Pública, Consejo Nacional de Investigaciones Científicas y Técnicas, Buenos Aires, Argentina., Pinazo MJ; Drugs for Neglected Diseases Initiative (DNDi), Geneva, Switzerland., Alonso-Padilla J; Barcelona Institute for Global Health (ISGlobal), Hospital Clínic-Universitat de Barcelona, Barcelona, Spain.; CIBER de Enfermedades Infecciosas, Instituto de Salud Carlos III (CIBERINFEC, ISCIII), Madrid, Spain., Hasslocher-Moreno AM; Evandro Chagas National Institute of Infectious Diseases, Fundação Oswaldo Cruz, Rio de Janeiro, Brasil.
Jazyk: angličtina
Zdroj: PLoS neglected tropical diseases [PLoS Negl Trop Dis] 2024 Aug 15; Vol. 18 (8), pp. e0012364. Date of Electronic Publication: 2024 Aug 15 (Print Publication: 2024).
DOI: 10.1371/journal.pntd.0012364
Abstrakt: The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather relevant data on epidemiological, clinical, diagnostic, and therapeutic aspects of the disease. This questionnaire was developed based on a consensus of expert members of the network, with the intention of collecting high-quality standardized data, which can be used interchangeably by the different research centers that make up the NHEPACHA network. Furthermore, the network intends to offer a clinical protocol that can be embraced by other researchers, facilitating comparability among published studies, as well as the development of therapeutic response and progression markers.
Competing Interests: The authors have declared that no competing interests exist.
(Copyright: © 2024 González Martínez et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
Databáze: MEDLINE
Externí odkaz:
Nepřihlášeným uživatelům se plný text nezobrazuje