Perceived challenges in treatment decision-making for endometriosis: healthcare professional perspectives.
| Autor: | Fallon L; School of Psychological Sciences, Macquarie University, Sydney, Australia.; Lifespan Health and Wellbeing Research Centre, Sydney, Australia., Lau AYS; Australian Institute of Health Innovation, Macquarie University, Sydney, Australia., Ciccia D; National Institute of Complementary Medicine (NICM), Health Research Institute, Western Sydney University, Sydney, Australia.; Endometriosis Australia, Sydney, Australia., Duckworth TJ; Endometriosis Australia, Sydney, Australia.; School of Biomedicine, Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, Australia.; School of Health Sciences, Faculty of Medicine and Health, University of Sydney, Sydney, Australia., Pereira C; School of Psychological Sciences, Macquarie University, Sydney, Australia., Kopp E; School of Psychological Sciences, Macquarie University, Sydney, Australia., Perica V; School of Psychological Sciences, Macquarie University, Sydney, Australia., Sherman KA; School of Psychological Sciences, Macquarie University, Sydney, Australia.; Lifespan Health and Wellbeing Research Centre, Sydney, Australia. |
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| Jazyk: | angličtina |
| Zdroj: | Health psychology and behavioral medicine [Health Psychol Behav Med] 2024 Aug 01; Vol. 12 (1), pp. 2383469. Date of Electronic Publication: 2024 Aug 01 (Print Publication: 2024). |
| DOI: | 10.1080/21642850.2024.2383469 |
| Abstrakt: | Background: Endometriosis, a systemic chronic inflammatory condition which has no cure, has a high symptom burden that can negatively impact every facet of life. Given the absence of a gold-standard treatment, the best symptom management regimen in endometriosis is heavily reliant on a patient's values and preferences, making shared decision-making (SDM) vital. However, a comprehensive patient decision aid (PtDA) intervention that could facilitate patient decision-making and promote SDM is lacking in endometriosis, and there is little research on the decisional support needs of individuals with this condition. This qualitative study aimed to explore healthcare professional (HP) perspectives of their clients' decisional support needs when choosing treatments to manage endometriosis symptoms, with a view to evaluating the need for a PtDA. Methods: Australian HPs identified as specialising in endometriosis care ( N = 13) were invited to participate in a short interview over the Internet by phone. Questions focussed on perceived facilitators and challenges of decision-making when choosing treatments for endometriosis. Transcribed qualitative data were thematically analysed and verified by multiple coders, using the template approach. Results: Four themes were identified: (1) Identifying and setting priorities; (2) HPs' lack of time and perceived lack of knowledge; (3) Patient-centred care and SDM, including patient capacity; and (4) Decision-making blinded by hope. This is the first known study to explore HPs' perspectives on patient decision-making challenges in endometriosis. Discussion: Findings draw attention to the difficulties people with endometriosis experience when assessing and choosing treatments, highlighting the need for a comprehensive PtDA intervention to support this decision-making. Competing Interests: No potential conflict of interest was reported by the author(s).The authors have no conflicts of interest to declare. (© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.) |
| Databáze: | MEDLINE |
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