Client Perceptions of the Individual Packer Managing Fatigue Program: A Mixed-Method Evaluation.

Autor:	Alizadeh N; Dalhousie University, Halifax, Nova Scotia, Canada., Packer TL; Dalhousie University, Halifax, Nova Scotia, Canada.; Umeå University, Umeå, Sweden., Jaswal S; Dalhousie University, Halifax, Nova Scotia, Canada., Sturkenboom I; Radboud University, Nijmegen, The Netherlands., Warner G; Dalhousie University, Halifax, Nova Scotia, Canada.
Jazyk:	angličtina
Zdroj:	OTJR : occupation, participation and health [OTJR (Thorofare N J)] 2024 Oct; Vol. 44 (4), pp. 632-641. Date of Electronic Publication: 2024 Jul 31.
DOI:	10.1177/15394492241262740
Abstrakt:	Fatigue is common, but under-recognized in Parkinson's disease (PD), with limited treatment options. The aim of this study is to explore the experience of people with PD (PwPD) regarding content and delivery of the individual Packer Managing Fatigue program. This mixed-method study ( n = 12) was conducted concurrently with a pilot randomized controlled trial. Data were collected using questionnaires, interviews, and focus groups. Five themes emerged: the program is helpful; the program has strengths; areas for improvement; individual online delivery is feasible; and more support from occupational therapist would be helpful. Quantitative findings confirmed feasibility with high ratings on questionnaires and confidence to use learned strategies. The findings inform future implementation of the Packer Managing Fatigue program and contribute to understanding the needs of PwPD. Future studies might explore program's effectiveness as stand-alone treatment or in combination with other approaches. Tailoring fatigue programs to PwPD's unique needs and characteristics of PD fatigue is suggested. Competing Interests: Declaration of Conflicting InterestsThe author(s) declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Packer is co-founder, with no financial interest, of Think Self-Management Inc. Think Self-Management provides health care professionals with the tools and resources to empower people living with chronic conditions to cultivate the self-management skills they need to live happier, healthier lives. The Packer Managing Fatigue Program is distributed by Think Self-Management. None of the other authors declares real or potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu