| Autor: |
Mackenzie CD; Coalition for Operational Research on Neglected Tropical Diseases (COR-NTD), Task Force for Global Health, Atlanta, Georgia.; The END Fund, New York, New York., Kapa DR; Consultant Lymphatic Filariasis Epidemiologist, Pondicherry, India., Krishnasastry S; Filariasis Research Unit, WHO Collaborating Center for LF MMDP, Government T. D. Medical College Hospital, Kerala University of Health Sciences, Alappuzha, India., Douglass J; Division of Tropical Health and Medicine, James Cook University, Townsville, Australia., Hoerauf A; Institute for Medical Microbiology, Immunology and Parasitology, University Hospital of Bonn, Bonn, Germany.; German Center for Infection Research (DZIF), Partner Site Bonn-Cologne, Germany., Ottesen EA; Coalition for Operational Research on Neglected Tropical Diseases (COR-NTD), Task Force for Global Health, Atlanta, Georgia. |
| Abstrakt: |
Providing and improving the care of patients suffering from lymphedema remains an essential goal for the clinical management of populations affected by lymphatic filariasis. Although the Essential Package of Care (EPC) recommended by the WHO leads to important positive benefits for many of these lymphedema patients, it is important to continue to address the challenges that remain both in quantifying these effects and in ensuring optimal care. This report, based on the authors' scientific and field experience, focuses on the impact and significance of lymphedema, its clinical presentation, current treatment approaches, and the importance of lymphedema care to the Global Program to Eliminate Lymphatic Filariasis. It emphasizes specific practical issues related to managing lymphedema, such as the importance of beginning treatment in the condition's early stages and the development of effective approaches to assess patients' progress toward improving both their clinical status and their overall quality of life. Priorities for research are also examined, particularly the need for tools to identify patients and to assess disease burden in endemic communities, the creation of EPC accessibility to as many patients as possible (i.e., targeting 100% "geographic coverage" of care), and the empowerment of patients to ensure the sustainability, and ultimately the provision of care from sectors of the national public health systems of endemic countries. |
