Bone health education in individuals with spinal cord injury or disease-the Bare Bones Podcast Series: plan it, produce it, post it!

Autor:	Craven BC; KITE Research Institute, University Health Network, Toronto, ON, Canada.; Rehabilitation Sciences Institute, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Division of Physical Medicine and Rehabilitation, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada., Kaiser A; KITE Research Institute, University Health Network, Toronto, ON, Canada.; Rehabilitation Sciences Institute, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Canadian Spinal Research Organization, Richmond Hill, ON, Canada., Blencowe LA; KITE Research Institute, University Health Network, Toronto, ON, Canada.; Institute of Medical Science, University of Toronto, Toronto, ON, Canada., Jervis-Rademeyer H; Department of Medicine, University of Alberta, Edmonton, AB, Canada., Boag L; KITE Research Institute, University Health Network, Toronto, ON, Canada., Murphy W; KITE Research Institute, University Health Network, Toronto, ON, Canada., Miyatani M; KITE Research Institute, University Health Network, Toronto, ON, Canada.
Jazyk:	angličtina
Zdroj:	Frontiers in rehabilitation sciences [Front Rehabil Sci] 2024 Jul 16; Vol. 5, pp. 1340881. Date of Electronic Publication: 2024 Jul 16 (Print Publication: 2024).
DOI:	10.3389/fresc.2024.1340881
Abstrakt:	Introduction: The Consortium for Spinal Cord Medicine's inaugural Clinical Practice Guideline for Bone Health and Osteoporosis Management for Individuals with Spinal Cord Injury or Disease (CSCM-CPG) was published in 2022 for a clinician audience. The aim of this project was to develop a podcast series to ensure people with lived experience with Spinal Cord Injury or Disease (PLEX) understand the CSCM-CPG content and know how to act to reduce their fracture risk. Methods: The "Bare Bones Podcast Series" consists of nine episodes; one related to each CSCM-CPG chapter. The podcast content and the questions asked in each podcast were co-developed by PLEX partners (PLEX-P) and the project team. Two PLEX-P acted as co-hosts for the series. The invited speaker(s) were CSCM-CPG expert panel members who participated in an informal dialogue with the hosts. Each podcast closes with a specific action a listener can do to advance their bone health. The related Educational Action Planning Tool (EAT) handouts contain text and infographic information specific to each podcast episode and include key concepts and a specific actionable take-home message. Local PLEX reviewers (PLEX-R) were invited to review podcast episodes and EATs and provide their feedback through focus group participation or one-on-one (1:1) interviews. The project team revised the podcast episodes and the EATs based on feedback from the PLEX-R prior to releasing them online. Results: Nine podcast episodes and related EATs were designed and created collaboratively with 3 PLEX-P, 22 PLEX-R, 11 CSCM-CPG expert panel members, and the project team. The episodes were titled: "Introduction to the Bare Bones of Bone Health"; "Fracture 101"; "Blood Tests-a Window into You"; "I See Your Skeleton"; "Vitamin D for all, Calcium for Some"; "Get Moving and Loading"; "Pills or Poisons & Atomic Habits"; "Snap and Crack"; and "Directions for Research". The Bare Bones Podcast Series was shared through the project website. Conclusions: The podcasts will aid PLEX and their family caregivers to advocate for ongoing bone health assessments and to promote an ongoing dialogue with care team members regarding how to prevent fractures and fracture-related morbidity and mortality. Competing Interests: BC was the Panel Chair for the Consortium for Spinal Cord Medicine's Clinical Practice Guideline for Bone Health and Osteoporosis Management for Individuals with Spinal Cord Injury or Disease. BC is the Chair of the Canadian Spinal Cord Injury Rehabilitation Association and a Board member of the Ontario SPOR Support Unit Board of Directors and a former member of the Osteoporosis Canada Scientific Advisory Committee. BC receives support from the UHN Foundation as the Cope Family Chair in Spinal Cord Injury Health Systems Innovation. The remaining authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. (© 2024 Craven, Kaiser, Blencowe, Jervis-Rademeyer, Boag, Murphy and Miyatani.)
Databáze:	MEDLINE
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