| Autor: |
Saldivia-Siracusa C; Departamento de Diagnóstico Oral, Faculdade de Odontologia de Piracicaba (FOP), Universidade Estadual de Campinas (UNICAMP), São Paulo 13414-903, Brazil., Dos Santos ES; Departamento de Diagnóstico Oral, Faculdade de Odontologia de Piracicaba (FOP), Universidade Estadual de Campinas (UNICAMP), São Paulo 13414-903, Brazil., González-Arriagada WA; Faculty of Dentistry, University of Los Andes, Santiago 26183000, Chile., Prado-Ribeiro AC; Departamento de Diagnóstico Oral, Faculdade de Odontologia de Piracicaba (FOP), Universidade Estadual de Campinas (UNICAMP), São Paulo 13414-903, Brazil.; Oral Medicine Service, Sírio Libanês Hospital, São Paulo 01308-050, Brazil., Brandão TB; Dental Oncology Service, São Paulo State Cancer Institute (ICESP-FMUSP), São Paulo 01246-903, Brazil., Owosho A; Departments of Diagnostic Sciences, Department of Otolaryngology-Head & Neck Surgery and Bioscience Research, College of Dentistry, The University of Tennessee Health Science Center, Memphis, TN 38163, USA., Lopes MA; Departamento de Diagnóstico Oral, Faculdade de Odontologia de Piracicaba (FOP), Universidade Estadual de Campinas (UNICAMP), São Paulo 13414-903, Brazil., Epstein JB; City of Hope Comprehensive Cancer Center, Duarte, CA 91010, USA.; Cedars-Sinai Medical Center, Los Angeles, CA 90048, USA., Santos-Silva AR; Departamento de Diagnóstico Oral, Faculdade de Odontologia de Piracicaba (FOP), Universidade Estadual de Campinas (UNICAMP), São Paulo 13414-903, Brazil. |
| Abstrakt: |
Cancer disclosure represents a complex healthcare dynamic. Physicians or caregivers may be prompted to withhold diagnosis information from patients. This study aims to comprehensively map and synthesize available evidence about diagnosis nondisclosure regarding head and neck cancer (HNC) patients. Following the Joanna Briggs Institute guidelines, a scoping review was conducted across major databases without period restriction, yielding 9238 publications. After screening and selection, a descriptive synthesis was conducted. Sixteen studies were included, primarily conducted in academic settings (75%) from Europe and Asia, with a total population of 662 patients predominantly diagnosed with brain, oral, pharyngeal, or laryngeal tumors. Remarkably, 22.51% of patients were unaware of their diagnosis. Although physicians were the main source of diagnostic information (35%), they reported to often use vague terms to convey malignancy. Additionally, 13.29% of patients were aware of their diagnosis from sources other than doctors or caregivers. Caregivers (55%) supported diagnosis concealment, and physicians tended to respect family wishes. A high diagnosis-to-death interval, education, and age significantly influenced diagnosis disclosure. HNC patients expressed a desire for personalized open communication. Multiple factors influenced the decision on diagnosis disclosure. Current evidence on this topic varies significantly, and there is limited research on the consequences of nondisclosure. These findings reflect the underestimation of the patients' outlook in the diagnosis process and highlight the need for further research, aiming to establish open communication and patient autonomy during the oncological journey. |
