Self-care behaviors and their individual-level determinants in Italian adults with Marfan syndrome: A single-center cross-sectional study.

Autor: Udugampolage N; Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy; Department of Biomedicine and Prevention, University of Rome Tor Vergata, Rome, Italy., Caruso R; Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy; Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy. Electronic address: rosario.caruso@grupposandonato.it., Magon A; Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Conte G; Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Callus E; Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan, Italy; Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy., Dellafiore F; Department of Public Health, Experimental and Forensic Medicine, Section of Hygiene, University of Pavia, Pavia, Italy., Pittella F; Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Arrigoni C; Department of Public Health, Experimental and Forensic Medicine, Section of Hygiene, University of Pavia, Pavia, Italy., Taurino J; Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy., Pini A; Cardiovascular-Genetic Center, IRCCS Policlinico San Donato, San Donato Milanese, Italy.
Jazyk: angličtina
Zdroj: Applied nursing research : ANR [Appl Nurs Res] 2024 Aug; Vol. 78, pp. 151821. Date of Electronic Publication: 2024 Jun 28.
DOI: 10.1016/j.apnr.2024.151821
Abstrakt: Aim: This study aimed to describe the levels of self-care behaviors and self-care self-efficacy in patients with Marfan syndrome and to identify the individual-level determinants of self-care behaviors.
Background: The behaviors aimed at maintaining health stability (self-care maintenance), monitoring signs and symptoms (self-care monitoring), and taking action when signs and symptoms occur (self-care management) are key aspects of the care for addressing the complexity of care of patients with Marfan syndrome. However, the description of self-care behaviors and their determinants in patients with Marfan syndrome are highly under-described.
Methods: The adopted design was descriptive observational with a cross-sectional data collection on 111 patients with MFS in a single Italian specialized and reference center for this disease between 2020 and 2021.
Results: Performing healthy activities and managing illness, therapies, and follow-ups to maintain health over time (self-care maintenance) was almost adequate (mean score = 67.87 ± 13.17), as well as the ability to recognize signs and symptoms promptly (self-care monitoring, mean score = 67.95 ± 26.70). The ability to respond to symptoms when they occur (self-care management, mean score = 54.17 ± 19.94) was sub-optimal. The stronger positive predictor of each self-care behavior was self-care self-efficacy.
Conclusions: This study suggested prioritizing educational activities focused on enhancing self-care management in patients with Marfan syndrome and strengthening their self-care self-efficacy. Researchers should develop and validate evidence-based educational approaches to enhance self-care in patients with Marfan syndrome, and clinical nurses should strengthen their focused educational activities to improve the self-care management of these patients.
Competing Interests: Declaration of competing interest The authors declare that they have no conflicts of interest.
(Copyright © 2024 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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