Ankyloglossia in Australia: Experiences and perspectives of parents and caregivers.

Autor: Akbari D; The University of Sydney, Sydney School of Health Sciences, Faculty of Medicine and Health, Sydney, Australia. Electronic address: dakb6645@uni.sydney.edu.au., Bogaardt H; The University of Adelaide, School of Allied Health Science and Practice, Adelaide, Australia., Docking K; The University of Sydney, Sydney School of Health Sciences, Faculty of Medicine and Health, Sydney, Australia. Electronic address: https://twitter.com/DrKimba.
Jazyk: angličtina
Zdroj: International journal of pediatric otorhinolaryngology [Int J Pediatr Otorhinolaryngol] 2024 Aug; Vol. 183, pp. 112046. Date of Electronic Publication: 2024 Jul 20.
DOI: 10.1016/j.ijporl.2024.112046
Abstrakt: Objectives: To investigate the perspectives and experiences of parents of infants with ankyloglossia in Australia.
Method: Two hundred and sixty-seven parents across Australia responded to an online survey including their experiences of having a child with ankyloglossia. Descriptive statistics were used to analyse quantitative data.
Results: Participants were from all Australian states and territories, with the majority residing in New South Wales and Victoria. Ankyloglossia diagnoses typically occurred within the first two weeks of life, driven mainly by difficulties with feeding. Lactation consultants played a prominent role in diagnosis, particularly in rural areas. Surgical interventions were common, with frenotomy using scissors or scalpel being the primary treatment. Aftercare recommendations, including stretching the frenotomy wound, were prevalent. Most parents received education about ankyloglossia, primarily through verbal and written information. Parents generally reported high satisfaction with the effectiveness of treatments, favouring surgical interventions. However, satisfaction with health professionals' support did not consistently correlate with the likelihood of consenting to the treatment again, and those who conducted their own research on ankyloglossia expressed lower satisfaction with health professionals' support.
Conclusions: The experiences of Australian parents in their infant's diagnosis, management and education of ankyloglossia varied greatly. Clinical guidelines for all relevant health professionals are needed to ensure standardised diagnosis and management processes. In future, this will help guide evidence-based diagnosis and intervention for infants with ankyloglossia.
Competing Interests: Declaration of competing interest The authors declare no conflicts of interest in regards to the research and outcomes presented in this manuscript. This research has not received any financial support or other benefits from a commercial entity or organisation.
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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