Global availability and uptake of psychological services for adults, caregivers and children with food allergy.

Autor: Knibb RC; Aston Institute for Health and Neurodevelopment, Aston University, Birmingham, UK., Herbert LJ; Children's National Health System, Washington, DC, USA.; George Washington University School of Medicine, Washington, DC, USA., Jones CJ; School of Psychology, Faculty of Health and Medical Sciences, University of Surrey, Guildford, UK., Protudjer JLP; Department of Pediatrics and Child Health, University of Manitoba, Winnipeg, Manitoba, Canada.; Children's Hospital Research Institute of Manitoba, Winnipeg, Manitoba, Canada.; Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden., Screti C; Aston Institute for Health and Neurodevelopment, Aston University, Birmingham, UK., Roleston C; Aston Institute for Health and Neurodevelopment, Aston University, Birmingham, UK.; Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK., Brough HA; Children's Allergy Service, Evelina Children's Hospital, Guy's and St. Thomas's NHS Foundation Trust, London, UK.; Department of Women and Children's Health (Pediatric Allergy), School of Life Course Sciences, Faculty of Life Sciences and Medicine, King's College London, London, UK.; Peter Gorer Department of Immunobiology, School of Immunology and Microbial Sciences, King's College London, London, UK., Warren C; Center for Food Allergy and Asthma Research, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA., Lombard L; Center for Food Allergy and Asthma Research, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.; Private Practice, Chicago, Illinois, USA., Santos AF; Children's Allergy Service, Evelina Children's Hospital, Guy's and St. Thomas's NHS Foundation Trust, London, UK.; Department of Women and Children's Health (Pediatric Allergy), School of Life Course Sciences, Faculty of Life Sciences and Medicine, King's College London, London, UK.; Peter Gorer Department of Immunobiology, School of Immunology and Microbial Sciences, King's College London, London, UK., Gupta R; Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois, USA.; Institute for Public Health and Medicine, Northwestern Feinberg School of Medicine, Chicago, Illinois, USA., Vickery BP; Emory University School of Medicine, Atlanta, Georgia, USA.; Children's Healthcare of Atlanta, Atlanta, Georgia, USA., Marchisotto MJ; MJM Advisory, New York, New York, USA.
Jazyk: angličtina
Zdroj: Allergy [Allergy] 2024 Oct; Vol. 79 (10), pp. 2787-2797. Date of Electronic Publication: 2024 Jun 21.
DOI: 10.1111/all.16204
Abstrakt: Background: Food allergy (FA) is associated with poor health-related quality of life and high levels of psychological distress. Psychological support is extremely important but not always available. As part of the Global Access to Psychological Services for Food Allergy (GAPS) study, we aimed to assess psychological distress and service use among adults, caregivers and children with FA in a global survey.
Methods: Participants (n = 1329 adults with FA; n = 1907 caregivers of children with FA) from >20 countries were recruited through patient organisations, social media advertisements and online survey panels to complete an online survey. Surveys were available in six languages.
Results: A total of 67.7% of adults and 77.2% of caregivers reported direct experience, and 51.6% of caregivers said their child had experienced FA-related psychological distress. The most commonly reported issue was anxiety about having an allergic reaction. Less than 20% had been assessed for FA-related psychological distress. There were significant differences across countries for levels of distress, screening for distress, seeing a mental health professional and being diagnosed with a FA-related mental health disorder (all p < .001). The United Kingdom, Australia and Brazil had the highest number of participants reporting distress. The most commonly reported barrier to seeing a mental health professional was cost.
Conclusions: FA-related distress is common across countries, but with substantial country-to-country variability. Allergy providers are encouraged to routinely assess families for psychological distress and provide access to appropriate mental health resources. Development and implementation of evidence-based, patient-informed accessible, affordable FA interventions in multiple languages is urgently needed.
(© 2024 The Author(s). Allergy published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.)
Databáze: MEDLINE
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