How to Involve Patients in GRAPPA Research as Partners.
| Autor: | de Wit M; M. de Wit, PhD, GRAPPA Patient Research Partner, Zaltbommel, the Netherlands; martinusdewit@hotmail.com., Chau J; J. Chau, MCS, GRAPPA Patient Research Partner, and Hong Kong Psoriatic Arthritis Association, Hong Kong., Grieb SM; S.M. Grieb, PhD, GRAPPA Patient Research Partner, USA. |
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| Jazyk: | angličtina |
| Zdroj: | The Journal of rheumatology [J Rheumatol] 2024 Oct 01; Vol. 51 (Suppl 2), pp. 61-64. Date of Electronic Publication: 2024 Oct 01. |
| DOI: | 10.3899/jrheum.2024-0262 |
| Abstrakt: | Patient research partners (PRPs) have been actively participating in the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) annual meetings, working groups, and research activities since 2013. As they have evolved, the PRPs operate as a cohesive group supported by their GRAPPA-approved handbook and policy documents. The number of involved PRPs has increased, allowing more opportunity for the incorporation of the patient voice and experience in GRAPPA activities. In the GRAPPA proceedings, PRPs regularly report on their involvement in the meetings and research projects. During a 30-minute plenary session at the GRAPPA 2023 annual meeting, attendees were informed about the evolving roles of PRPs in GRAPPA and beyond and were asked to provide feedback on their experience and opinions regarding PRP involvement in psoriatic disease research. Here we report the key messages of the session, including polling results, examples of PRP involvement, and ongoing challenges. (Copyright © 2024 by The Journal of Rheumatology.) |
| Databáze: | MEDLINE |
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