Are we informing our patients correctly? Evaluation of perioperative counselling for paediatric intestinal stoma formation: a national study.

Autor: Roberts R; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK. rebecca.roberts72@nhs.net., Burdall O; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK., Bohr C; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK., Kennard H; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK., Lewis S; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK., Harris L; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK., Cusick E; Department of Paediatric Surgery, Bristol Children's Hospital, Upper Maudlin Street, Bristol, BS2 8BJ, UK.
Jazyk: angličtina
Zdroj: Pediatric surgery international [Pediatr Surg Int] 2024 Jul 15; Vol. 40 (1), pp. 189. Date of Electronic Publication: 2024 Jul 15.
DOI: 10.1007/s00383-024-05756-3
Abstrakt: Purpose: Adequate preoperative information is known to improve patient outcomes. We aimed to evaluate perioperative education for paediatric patients and families undergoing intestinal stoma formation.
Methods: UK paediatric surgery centres were invited to recruit patients aged 6-16 years with a stoma in situ or reversed within the last 2 years. Patient and parent questionnaires were posted for potential participants.
Results: Eighty-three patient/parent dyads returned questionnaires. Median age was 11.5 years (range 4.1-17.8), with 48% (n = 40) formed electively. Parents rated how well-informed they felt perioperatively out of 10 (0 poorly, 10 highly informed). Parents were better informed about surgical issues and stoma care than psychological and social impacts (7.45 vs 6.11; p < 0.0001). 54% reported surgical complications but significantly fewer patients listed these amongst the worst things about having a stoma (24.4%) when compared with psychosocial issues: distress from bag leaks (90.8%; p < 0.0001), self-consciousness (54.1%; p = 0.0001), and restricted activity (40.2%; p = 0.03).
Conclusion: Parents felt well-informed for medical and practical aspects but less well-informed of psychological and lifestyle impacts of having a stoma. Surgical complications were less important to patients than the impact on daily life. Increased psychosocial information would enable families to be better prepared for life with a stoma.
(© 2024. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.)
Databáze: MEDLINE
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