Evaluating the Internet as a Source of Information for Patients With Hidradenitis Suppurativa: A Review of Websites' Content, Insights Into Engagement, and Access.
| Autor: | Karamitros G; Medical School, University of Ioannina, Ioannina, Greece.; Department of Surgery, Division of Plastic and Reconstructive Surgery, University Hospital of Ioannina, Ioannina, Greece., Antonios-Vlachos G; Medical School, University of Ioannina, Ioannina, Greece., Kok C; Imperial College, Medical School, London, UK., Goulas S; Brookings Institution, Washington, District of Columbia.; World Bank, Washington, District of Columbia.; Aletheia Research Institution, Palo Alto, California.; Hoover Institution, Stanford University, Stanford, California., Lamaris GA; Division of Plastic and Reconstructive Surgery, R. Adams Cowley Shock Trauma Center, University of Maryland Medical Center, Baltimore, Maryland. |
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| Jazyk: | angličtina |
| Zdroj: | Dermatologic surgery : official publication for American Society for Dermatologic Surgery [et al.] [Dermatol Surg] 2024 Dec 01; Vol. 50 (12), pp. 1167-1174. Date of Electronic Publication: 2024 Jul 10. |
| DOI: | 10.1097/DSS.0000000000004323 |
| Abstrakt: | Background: The Internet has become the primary information source for patients, with most turning to online resources before seeking medical advice. Objective: The aim of this study is to evaluate the quality of online information on hidradenitis suppurativa available to patients. Methods: The authors performed an Internet search using the search terms "hidradenitis suppurativa," "hidradenitis suppurativa treatment," "hidradenitis suppurativa surgery," and "acne inversa." They identified the initial 100 websites from Google, Yahoo, and Bing. Websites were evaluated based on the modified Ensuring Quality Information for Patients instrument. Results: Of the 300 websites, 95 (31.7%) were incorporated after accounting for the exclusion criteria: duplicate entries, websites not pertinent to the subject matter, websites inaccessible due to location restrictions or necessitating user accounts for access, websites in languages other than English, and websites originating from scientific publications directed at a scientific audience rather than the general population. Ensuring Quality Information for Patients scores ranged from 5 to 30/36, with a median of 17. Conclusion: This analysis unveils a diverse array of websites that could confound patients navigating toward high-caliber resources. These barriers may hinder the access to top-tier online patient information and magnify disparities in referral rates, patient engagement, treatment satisfaction, and quality of life. (Copyright © 2024 by the American Society for Dermatologic Surgery, Inc. Published by Wolters Kluwer Health, Inc. All rights reserved.) |
| Databáze: | MEDLINE |
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