Research to classrooms: a co-designed curriculum brings All of Us data to secondary schools.

Autor:	Stark LA; Genetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States., Fenker KE; Genetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States., Krishnan H; Genetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States., Malone M; Genetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States., Peterson RJ; Genetic Science Learning Center, Department of Human Genetics, University of Utah, Salt Lake City, UT 84112, United States., Cowan R; Science Department, Mojave High School, North Las Vegas, NV 89031, United States., Ensrud J; Science Department, Canby High School, Canby, OR 97013, United States., Gamboa H; Science Department, West Middle School, Bay Shore, NY 11706, United States., Gayed C; Science Department, Technology High School, Paramus, NJ 07652, United States., Refino P; Science Department, East Rockaway High School, East Rockaway, NY 11518, United States., Tolk T; Science Department, Lincoln High School, Sioux Falls, SD 57105, United States., Walters T; Science Department, Loup City High School, Loup City, NE 68853, United States., Crosby Y; Division of Engagement and Outreach, All of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States., Baskir R; Division of Engagement and Outreach, All of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Jazyk:	angličtina
Zdroj:	Journal of the American Medical Informatics Association : JAMIA [J Am Med Inform Assoc] 2024 Dec 01; Vol. 31 (12), pp. 2837-2848.
DOI:	10.1093/jamia/ocae167
Abstrakt:	Objectives: We describe new curriculum materials for engaging secondary school students in exploring the "big data" in the NIH All of Us Research Program's Public Data Browser and the co-design processes used to collaboratively develop the materials. We also describe the methods used to develop and validate assessment items for studying the efficacy of the materials for student learning as well as preliminary findings from these studies. Materials and Methods: Secondary-level biology teachers from across the United States participated in a 2.5-day Co-design Summer Institute. After learning about the All of Us Research Program and its Data Browser, they collaboratively developed learning objectives and initial ideas for learning experiences related to exploring the Data Browser and big data. The Genetic Science Learning Center team at the University of Utah further developed the educators' ideas. Additional teachers and their students participated in classroom pilot studies to validate a 22-item instrument that assesses students' knowledge. Educators completed surveys about the materials and their experiences. Results: The "Exploring Big Data with the All of Us Data Browser" curriculum module includes 3 data exploration guides that engage students in using the Data Browser, 3 related multimedia pieces, and teacher support materials. Pilot testing showed substantial growth in students' understanding of key big data concepts and research applications. Discussion and Conclusion: Our co-design process provides a model for educator engagement. The new curriculum module serves as a model for introducing secondary students to big data and precision medicine research by exploring diverse real-world datasets. (© The Author(s) 2024. Published by Oxford University Press on behalf of the American Medical Informatics Association.)
Databáze:	MEDLINE
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