Perspectives of people with spinal cord injury on a pain education resource.

Autor:	Fernandez GE; The Miami Project to Cure Paralysis, University of Miami, Miami, FL, United States.; Psychology Graduate Program, Nova Southeastern University, Davie, FL, United States., Anderson KD; Department of Physical Medicine and Rehabilitation, MetroHealth System, Case Western Reserve University School of Medicine, Cleveland, OH, United States., Vastano R; The Miami Project to Cure Paralysis, University of Miami, Miami, FL, United States., Frank SI; The Miami Project to Cure Paralysis, University of Miami, Miami, FL, United States.; Neuroscience Graduate Program, University of Miami, Miami, FL, United States., Robayo LE; The Miami Project to Cure Paralysis, University of Miami, Miami, FL, United States., Cherup NP; The Miami Project to Cure Paralysis, University of Miami, Miami, FL, United States., Kochen W; Psychology Graduate Program, Nova Southeastern University, Davie, FL, United States., Widerström-Noga E; The Miami Project to Cure Paralysis, University of Miami, Miami, FL, United States.; Neuroscience Graduate Program, University of Miami, Miami, FL, United States.; Department of Neurological Surgery, University of Miami, Miami, FL, United States.
Jazyk:	angličtina
Zdroj:	Frontiers in public health [Front Public Health] 2024 Jun 19; Vol. 12, pp. 1385831. Date of Electronic Publication: 2024 Jun 19 (Print Publication: 2024).
DOI:	10.3389/fpubh.2024.1385831
Abstrakt:	Introduction: Spinal cord injury (SCI) often leads to neuropathic pain that negatively affects quality of life. Several qualitative research studies in individuals with SCI who experience neuropathic pain indicate the lack of adequate information about pain. We previously developed an educational resource, the SeePain, based on scientific literature and a series of qualitative interviews of people with SCI, their significant others/family members, and SCI healthcare providers. Methods: However, to quantitatively evaluate the utility of this educational resource in a larger sample, we examined the agreement and usefulness ratings of statements regarding clarity/comprehensibility, content, and format of the SeePain, derived from the thematic analysis of our previous qualitative interviews. Participants completed a survey that provided a digital version of the SeePain and then rated their agreement/usefulness with the statements using numerical rating scales. Results: There were overall high perceived agreement and usefulness ratings regarding the SeePain 's clarity, content, and format. A factor analysis reduced the agreement and usefulness ratings into 4 components (content, clarity, format, and delivery medium). Group comparisons showed that individuals with higher education were more likely to endorse electronic and website formats, and the usefulness of a shorter version of the SeePain; females and younger individuals showed greater endorsement for clarity. Finally, higher pain intensity ratings were associated with greater agreement and usefulness of the content of the SeePain . Discussion: Overall, these results support the utility of the SeePain as a source of information regarding pain that may facilitate communication about pain and its management following SCI. Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. The first part of the survey consisted of an information page and an institutionally approved waiver of signed informed consent. Consent was granted by the agreement to continue with the survey. (Copyright © 2024 Fernandez, Anderson, Vastano, Frank, Robayo, Cherup, Kochen and Widerström-Noga.)
Databáze:	MEDLINE
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