"When she goes out, she feels better:" co-designing a Green Activity Program with Hispanic/Latino people living with memory challenges and care partners.

Autor: Lassell RKF; Department of Health and Wellness Design, School of Public Health, Indiana University, Bloomington, IN, United States.; Regenstrief Institute, Indiana University Center for Aging Research, Indianapolis, IN, United States.; Hartford Institute for Geriatric Nursing (HIGN), NYU Rory Meyers College of Nursing, New York, NY, United States., Tamayo V; Department of Health and Wellness Design, School of Public Health, Indiana University, Bloomington, IN, United States.; Department of Art and Art Professions, NYU Steinhardt, New York, NY, United States., Pena TA; Hartford Institute for Geriatric Nursing (HIGN), NYU Rory Meyers College of Nursing, New York, NY, United States., Kishi M; Arthur S. Abramson Department of Rehabilitation Medicine, Albert Einstein College of Medicine, Bronx, NY, United States., Zwerling J; The Saul R. Korey Department of Neurology, Albert Einstein College of Medicine, Bronx, NY, United States., Gitlin LN; College of Nursing and Health Professions, Drexel University, Philadelphia, PA, United States., Brody AA; Hartford Institute for Geriatric Nursing (HIGN), NYU Rory Meyers College of Nursing, New York, NY, United States.; Division of Geriatric Medicine and Palliative Care, Department of Medicine, NYU Grossman School of Medicine, New York, NY, United States.
Jazyk: angličtina
Zdroj: Frontiers in aging neuroscience [Front Aging Neurosci] 2024 Jun 18; Vol. 16, pp. 1401255. Date of Electronic Publication: 2024 Jun 18 (Print Publication: 2024).
DOI: 10.3389/fnagi.2024.1401255
Abstrakt: Purpose: Utilizing a participatory approach, we sought to co-design a 12-week Green Activity Program (GAP) with Hispanic/Latino individuals living with memory challenges and their care partners, local outdoor professionals, and healthcare providers.
Methods: Participants were recruited via convenience and snowball sampling in the Bronx, New York with Hispanic/Latino persons living with memory challenges and care partners, outdoor activity professionals, and interdisciplinary healthcare providers/dementia experts. Co-design occurred iteratively with 5 focus groups and 4 individual interviews lasting 30-90 min and focused on program and research design. Sessions were recorded and transcribed. Utilizing directed content analysis data was coded using a priori codes program design and research design.
Results: 21 participants completed co-design activities: ( n = 8 outdoor activity professionals, n = 6 Hispanic/Latino persons living with memory challenges and care partners, and n = 7 interdisciplinary healthcare providers/dementia experts). Participant preferences for program design were captured by subcodes session duration (30-90 min), frequency (4-8 sessions), and delivery modes (in-person and phone). Participants' preferred nature activities included group exercise and outdoor crafts [crocheting], outcomes of social participation, connectedness to nature, decreased loneliness, and stewardship were identified. Preferred language for recruiting and describing the program were "memory challenges," "Hispanic/Latino," and "wellbeing." Referral pathways were identified including community-based organizations and primary care.
Conclusion: Co-design was a successful form of engagement for people living with memory challenges that enabled participants to help design key elements of the GAP and research design. Our processes, findings, and recommendations for tailoring co-design to engage Hispanic/Latino people living with memory challenges can inform the development of other programs for this population.
Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
(Copyright © 2024 Lassell, Tamayo, Pena, Kishi, Zwerling, Gitlin and Brody.)
Databáze: MEDLINE