Examining the Case for Palliative Care in Patients With Systemic Sclerosis.

Autor:	McDonald JC; J.C. McDonald, MBChB, Respiratory and Sleep Medicine Department, St Vincent's Hospital Melbourne, and Palliative Care Department, St Vincent's Hospital Melbourne, and Department of Medicine, University of Melbourne, St Vincent's Hospital; julie.mcdonald@unimelb.edu.au., Ross L; L. Ross, MBBS, PhD, Department of Medicine, University of Melbourne, St Vincent's Hospital, and Department of Rheumatology, St Vincent's Hospital Melbourne., Wicks CJ; C.J. Wicks, MBBS, Palliative Care Department, St Vincent's Hospital Melbourne., Philip JAM; J.A.M. Philip, MBBS, MMed, Grad Dip Pal Med, PhD, Palliative Care Department, St Vincent's Hospital Melbourne, and Department of Medicine, University of Melbourne, St Vincent's Hospital, and Parkville Integrated Palliative Care Service, Peter MacCallum Cancer Centre & Royal Melbourne Hospital, Melbourne, Victoria, Australia.
Jazyk:	angličtina
Zdroj:	The Journal of rheumatology [J Rheumatol] 2024 Oct 01; Vol. 51 (10), pp. 957-963. Date of Electronic Publication: 2024 Oct 01.
DOI:	10.3899/jrheum.2023-1251
Abstrakt:	Systemic sclerosis (SSc) is a complex, multiorgan disease that causes substantial and progressive symptoms and impairs quality of life. International guidelines recommend early, integrated palliative care for patients with advanced cardiopulmonary disease, such as heart failure and interstitial lung disease, as this care can improve patient, caregiver, and healthcare outcomes. In this article, we examine the potential need and role for palliative care in SSc. We propose that early, integrated palliative care could improve symptom control and quality of life and recommend a research agenda for palliative care in SSc to address the lack of evidence in this area. (Copyright © 2024 by the Journal of Rheumatology.)
Databáze:	MEDLINE
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