Validation of the Integrated Palliative Care Outcome Scale (IPOS) in adults with cystic fibrosis.

Autor: Georgiopoulos AM; Department of Psychiatry, Massachusetts General Hospital, Boston, Massachusetts, USA., DiFiglia S; MJHS Institute for Innovation in Palliative Care, New York, New York, USA., Seng EK; Ferkauf Graduate School of Psychology, New York, New York, USA.; Albert Einstein College of Medicine, Bronx, New York, USA., Portenoy R; MJHS Institute for Innovation in Palliative Care, New York, New York, USA.; Departments of Family and Social Medicine and Neurology, Albert Einstein College of Medicine, Bronx, New York, USA., Chaudhary N; Department of Pediatrics, Massachusetts General Hospital, Boston, Massachusetts, USA., Wei R; Department of Pediatrics, Massachusetts General Hospital, Boston, Massachusetts, USA., Berdella MN; Lenox Hill Hospital Northwell Health, New York, New York, USA., Friedman D; Department of Psychiatry, Massachusetts General Hospital, Boston, Massachusetts, USA., Kier C; Stony Brook Medicine, Stony Brook, New York, USA., Linnemann RW; Emory University School of Medicine, Atlanta, Georgia, USA.; Children's Healthcare of Atlanta, Atlanta, Georgia, USA., Middour-Oxler B; Emory University School of Medicine, Atlanta, Georgia, USA.; Children's Healthcare of Atlanta, Atlanta, Georgia, USA., Stables-Carney T; Stony Brook Medicine, Stony Brook, New York, USA., Walker P; Lenox Hill Hospital Northwell Health, New York, New York, USA., Wang J; Long Island Jewish Medical Center, Northwell Health, New Hyde Park, New York, USA., Yonker LM; Pulmonary Division, Massachusetts General for Children, Boston, Massachusetts, USA., Dhingra L; MJHS Institute for Innovation in Palliative Care, New York, New York, USA.; Department of Family and Social Medicine, Albert Einstein College of Medicine, Bronx, New York, USA.
Jazyk: angličtina
Zdroj: Pediatric pulmonology [Pediatr Pulmonol] 2024 Nov; Vol. 59 (11), pp. 2857-2866. Date of Electronic Publication: 2024 Jun 27.
DOI: 10.1002/ppul.27143
Abstrakt: Background: A primary palliative care model for cystic fibrosis (CF) recommends using the Integrated Palliative Care Outcome Scale (IPOS) for screening. Validation of the IPOS is needed.
Methods: This secondary analysis utilized baseline data from a multisite trial of the palliative care model, Improving Life with CF. Adults with CF completed the IPOS, the Memorial Symptom Assessment Scale-CF (MSAS-CF), the CF Questionnaire-Revised (CFQ-R), the Patient Health Questionnaire (PHQ-8), the Generalized Anxiety Disorder (GAD-7), and the Perceived Stress Scale (PSS). IPOS structure was assessed using Cronbach α coefficients and a factor analysis. Construct validity was evaluated through bivariate relationships between IPOS scores and other questionnaire scores, and linear regressions assessing the extent to which the IPOS explains variance in quality-of-life domains.
Results: The sample comprised 256 adults with complete IPOS data. α coefficients were .86 for the IPOS total score, .81 for the Physical Symptoms subscale, .79 for the Emotional Symptoms subscale, and .63 for the Communication/Practical Issues subscale. A two-component factor structure best aligned with the current subscales. IPOS scores were significantly associated with other measures; associations with MSAS-CF and CFQ-R subscales differentiated the IPOS Physical and Emotional subscales. The IPOS total score provided unique information about the variance in the CFQ-R Physical Functioning and Respiratory Symptoms domain scores.
Conclusions: In adults with CF, the IPOS has acceptable internal consistency and there is evidence of construct validity. These findings support adoption of the IPOS in the primary palliative care model for CF.
(© 2024 Wiley Periodicals LLC.)
Databáze: MEDLINE
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