"An excellent servant but a terrible master": Understanding the value of wearables for self-management in people with cystic fibrosis and their healthcare providers - A qualitative study.

Autor: Mattison G; Queensland Digital Health Centre, The University of Queensland, Brisbane, Australia; The Prince Charles Hospital, Metro North Hospitals and Health Service, Brisbane, Australia; Digital Health Cooperative Research Centre, Sydney Knowledge Hub, The University of Sydney, Sydney, Australia. Electronic address: graeme.mattison@health.qld.gov.au., Canfell OJ; Queensland Digital Health Centre, The University of Queensland, Brisbane, Australia; Digital Health Cooperative Research Centre, Sydney Knowledge Hub, The University of Sydney, Sydney, Australia; UQ Business School, Faculty of Business, Economics and Law, The University of Queensland, Brisbane, Australia; Department of Nutritional Sciences, Faculty of Life Sciences and Medicine, King's College, London SE1 9NH, UK., Smith D; The Prince Charles Hospital, Metro North Hospitals and Health Service, Brisbane, Australia; Faculty of Medicine, The University of Queensland, Brisbane, Australia., Forrester D; The Prince Charles Hospital, Metro North Hospitals and Health Service, Brisbane, Australia; Faculty of Health Sciences, Curtin University, Perth, Australia., Reid D; The Prince Charles Hospital, Metro North Hospitals and Health Service, Brisbane, Australia; Faculty of Medicine, The University of Queensland, Brisbane, Australia; QIMR Berghofer Institute of Medical Research, Brisbane, Australia., Töyräs J; School of Electrical Engineering and Computer Science, The University of Queensland, Brisbane, Australia; Department of Technical Physics, University of Eastern Finland, Kuopio, Finland; Science Service Center, Kuopio University Hospital, Kuopio, Finland., Dobbins C; School of Electrical Engineering and Computer Science, The University of Queensland, Brisbane, Australia.
Jazyk: angličtina
Zdroj: International journal of medical informatics [Int J Med Inform] 2024 Sep; Vol. 189, pp. 105532. Date of Electronic Publication: 2024 Jun 24.
DOI: 10.1016/j.ijmedinf.2024.105532
Abstrakt: Background: Wearables hold potential to improve chronic disease self-management in conditions like cystic fibrosis (CF) through remote monitoring, early detection of illness and motivation. Little is known about the acceptability and sustainability of integrating wearables into routine care from the perspectives of people with CF (pwCF) and their treating clinicians.
Methods: A cross-sectional qualitative study involving semi-structured interviews with adult pwCF and focus groups comprising members of a CF multidisciplinary team (MDT) were conducted at a specialist CF centre in Australia. A phenomenological orientation underpinned the study. Inductive thematic analysis was performed using the Framework method. The study adhered to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist.
Results: Nine pwCF and eight members of a CF MDT, representing six clinical disciplines, participated in the study. Eight themes were inductively generated from the data, of which four were identified from each group. PwCF valued wearables for providing real-time data to motivate healthy behaviours and support shared goal-setting with healthcare providers. Wearables did not influence adherence to CF-specific self-management practices and had some hardware limitations. Members of the CF MDT recognised potential benefits of remote monitoring and shared goal-setting, but advised caution regarding data accuracy, generating patient anxiety in certain personality traits, and lack of evidence supporting use in CF self-management.
Conclusions: Perspectives on integrating wearables into CF care were cautiously optimistic, with emerging risks related to patient anxiety and lack of evidence moderating acceptance.
Competing Interests: Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Copyright © 2024 The Author(s). Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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