| Autor: |
Smrke U; Faculty of Electrical Engineering and Computer Science, University of Maribor, 2000 Maribor, Slovenia., Abalde-Cela S; RUBYnanomed LDA, Praça Conde de Agrolongo, 4700-314 Braga, Portugal., Loly C; Gastroenterology Department, University Hospital of Liège, 4000 Liège, Belgium., Calbimonte JP; Institute of Informatics, University of Applied Sciences and Arts Western Switzerland HES-SO, 3960 Sierre, Switzerland.; The Sense Innovation & Research Center, 1007 Lausanne, Switzerland., Pires LR; RUBYnanomed LDA, Praça Conde de Agrolongo, 4700-314 Braga, Portugal., Lin S; Science Department, Symptoma GmbH, 5020 Vienna, Austria.; Department of Internal Medicine, Paracelsus Medical University, 5020 Salzburg, Austria., Sánchez A; Department of eHealth, Galician Research & Development Center in Advanced Telecommunications (GRADIANT), 26334 Vigo, Spain., Tement S; Department of Psychology, Faculty of Arts, University of Maribor, 2000 Maribor, Slovenia., Mlakar I; Faculty of Electrical Engineering and Computer Science, University of Maribor, 2000 Maribor, Slovenia. |
| Abstrakt: |
Quality of life (QoL) assessments are integral to cancer care, yet their effectiveness in providing essential information for supporting survivors varies. This study aimed to elucidate key indicators of QoL among colorectal cancer survivors from the perspective of healthcare professionals, and to evaluate existing QoL questionnaires in relation to these indicators. Two studies were conducted: a Delphi study to identify key QoL indicators and a scoping review of questionnaires suitable for colorectal cancer survivors. Fifty-four healthcare professionals participated in the Delphi study's first round, with 25 in the second. The study identified two primary QoL domains (physical and psychological) and 17 subdomains deemed most critical. Additionally, a review of 12 questionnaires revealed two instruments assessing the most important general domains. The findings underscored a misalignment between existing assessment tools and healthcare professionals' clinical priorities in working with colorectal cancer survivors. To enhance support for survivors' QoL, efforts are needed to develop instruments that better align with the demands of routine QoL assessment in clinical practice. |
