"There has to be more caring": patient and care partner experiences of the disclosure of amyloid-β PET scan results.

Autor:	Couch E; Center for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, RI, USA.; Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA., Zhang W; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA., Belanger E; Center for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, RI, USA.; Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA., Shepherd-Banigan M; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.; Duke-Margolis Center for Health Policy, Durham, NC, USA.; Center of Innovation to Accelerate Discovery and Practice Transformation, Durham VA Health Care System, Durham, NC, USA., DePasquale N; Division of General Internal Medicine, Duke University School of Medicine, Durham, NC, USA., Van Houtven CH; Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA.; Duke-Margolis Center for Health Policy, Durham, NC, USA.; Center of Innovation to Accelerate Discovery and Practice Transformation, Durham VA Health Care System, Durham, NC, USA., Gadbois EA; Center for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, RI, USA.; Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA., Wetle T; Center for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, RI, USA.; Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, USA.
Jazyk:	angličtina
Zdroj:	Aging & mental health [Aging Ment Health] 2024 Jun 26, pp. 1-9. Date of Electronic Publication: 2024 Jun 26.
DOI:	10.1080/13607863.2024.2371471
Abstrakt:	Objectives: To explore patient and care partner experiences of receiving an amyloid scan result, with a focus on how clinician disclosure practices influenced patient and care partner emotional responses to the scan result and/or diagnosis. Methods: Semi-structured interviews with 38 people with mild cognitive impairment or dementia and 62 care partners who experienced the disclosure of results from an amyloid PET scan as part of the CARE-IDEAS study. We used thematic analysis to analyze interview transcripts. Results: We identified four aspects of the disclosure process that could influence patient and care partner emotional experiences of the scan result/diagnosis: (1) mode of delivery, (2) presence of a care partner, (3) clarity of the scan result explanation, and (4) discussion of post-scan treatment and support options. Conclusions: Emotional experiences of an amyloid scan result can vary depending on how results are communicated. These findings support previous efforts to develop standard disclosure protocols. Scan results should be delivered in person with the care partner present. Clinicians should give a clear explanation of the result and its implications in an empathetic manner. Options for treatment and support should be discussed for all patients.
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu