Conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities: a scoping review.

Autor:	Patsakos EM; Rehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada.; KITE Research Institute - Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada., Patel S; Rehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada.; KITE Research Institute - Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada., Simpson R; Institute of Health and Wellbeing, University of Glasgow, Glasgow, United Kingdom.; Division of Physical Medicine and Rehabilitation, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada., Nelson MLA; Lunenfeld-Tanenbaum Research Institute, Toronto, ON, Canada.; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada., Penner M; Autism Research Centre, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.; Department of Paediatrics, Faculty of Medicine, University of Toronto, Toronto, ON, Canada., Perrier L; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada., Bayley MT; KITE Research Institute - Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada.; Division of Physical Medicine and Rehabilitation, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada., Munce SEP; Rehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada.; KITE Research Institute - Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada.
Jazyk:	angličtina
Zdroj:	Frontiers in psychology [Front Psychol] 2024 Jun 07; Vol. 15, pp. 1365205. Date of Electronic Publication: 2024 Jun 07 (Print Publication: 2024).
DOI:	10.3389/fpsyg.2024.1365205
Abstrakt:	Introduction: To examine the scope of existing literature on the conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities. Methods: A protocol was developed based on the Joanna Briggs Institute (JBI) scoping review method. MEDLINE, EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials, and EBSCOhost CINAHL, were searched. Results: Eight studies were selected for inclusion; four used quantitative methodology, and four used qualitative methods. Compassion was not defined a priori or a posteriori in any of the included studies. The concept of self-compassion was explicitly defined only for parents of youth with childhood-onset disabilities in three studies a priori . The most reported outcome measure was self-compassion in parents of youth with childhood-onset disabilities. Self-compassion among parents was associated with greater quality of life and resiliency and lower stress, depression, shame and guilt. Discussion: There is limited evidence on the conceptualization, use, and outcomes associated with compassion among youth with childhood-onset disabilities. Self-compassion may be an effective internal coping process among parents of youth with childhood-onset disabilities. Further research is required to understand the meaning of compassion to youth with childhood-onset disabilities, their parents and caregivers. Systematic Review Registration: https://doi.org/10.17605/OSF.IO/2GRB4. Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. The author(s) declared that they were an editorial board member of Frontiers, at the time of submission. This had no impact on the peer review process and the final decision. (Copyright © 2024 Patsakos, Patel, Simpson, Nelson, Penner, Perrier, Bayley and Munce.)
Databáze:	MEDLINE
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