National myeloma patient survey shows continuing inappropriate imaging and geographical inequalities.
Autor: | Quinn SCM; Research and Advocacy Directorate, Myeloma UK, Edinburgh EH7 4HG, United Kingdom., Goh V; Department of Cancer Imaging, School of Biomedical Engineering and Imaging Sciences, King's College London, London, WC2R 2LS, United Kingdom., Westerland OA; Clinical Imaging and Medical Physics, Guy's and St Thomas' NHS Foundation Trust, London, SE1 9RT, United Kingdom., Pratt G; Clinical Haematology, University Hospitals Birmingham NHS Foundation Trust, Birmingham, B15 2WB, United Kingdom. |
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Jazyk: | angličtina |
Zdroj: | The British journal of radiology [Br J Radiol] 2024 Aug 01; Vol. 97 (1160), pp. 1443-1449. |
DOI: | 10.1093/bjr/tqae110 |
Abstrakt: | Objective: To evaluate the provision of imaging at diagnosis of myeloma from the service user perspective with a specific focus on how the experiences of patients align with the National Institute for Health and Care Excellence (NICE) guidelines (NG35, 2016) on first-line imaging practice for myeloma in the United Kingdom. Methods: A national survey was performed to evaluate access to imaging from the patient's perspective. Patients with myeloma who received their diagnosis between 2017 and March 2022 were invited to participate. Data were collected using an online survey from 895 patients and carers between 4 and 14 March 2022. Results: Most patients had more than one imaging test. First-line MRI was used in 69.2% of respondents. First-line skeletal survey (SS, whole body X-rays) remained common (48.7% of respondents). 18F-fluorodexyglucose positron emission tomography/computed tomography (18F-FDG PET/CT) was used least often (23.1% of respondents). SS was used more often in East England (57.9%) and Scotland (61.2%) than in South East England (36.3%). Conclusions: Despite NICE recommendations, first-line MRI was not used in a third of patients surveyed, with geographical variation in imaging practice. Patients are still undergoing multiple imaging tests at diagnosis. Healthcare professionals should continue to emphasize the superiority of MRI compared to SS to drive for improvements in care. Advances in Knowledge: Current recommendations on first-line imaging for myeloma are not provided consistently across the United Kingdom. There is a need to drive change and support healthcare professionals to deliver guidance-based recommendations to improve experience and outcomes for patients. (© The Author(s) 2024. Published by Oxford University Press on behalf of the British Institute of Radiology. All rights reserved. For permissions, please email: journals.permissions@oup.com.) |
Databáze: | MEDLINE |
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