Development and validation of a supportive programme for family caregivers of children suffering from cystic fibrosis: protocol for a sequential exploratory mixed-methods study.

Autor:	Shadi D; Department of Pediatric Nursing, Nursing and Midwifery faculty,Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of)., Jabraeili M; Department of Pediatric Nursing, Nursing and Midwifery faculty,Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of)., Hassankhani H; Department of Medical Surgical Nursing, Nursing and Midwifery faculty,Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of)., Alhani F; Tarbiat Modares University, Tehran, Iran (the Islamic Republic of)., Bostanabad MA; Department of Pediatric Nursing, Nursing and Midwifery faculty,Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of) arshadi9429@gmail.com.
Jazyk:	angličtina
Zdroj:	BMJ open [BMJ Open] 2024 Jun 03; Vol. 14 (6), pp. e081560. Date of Electronic Publication: 2024 Jun 03.
DOI:	10.1136/bmjopen-2023-081560
Abstrakt:	Introduction: Families with children who have cystic fibrosis (CF) face a multitude of challenges. They require complex and time-consuming daily care, various forms of knowledge and intricate care responsibilities. One of the most critical challenges that Iranian families of children with CF face is the lack of adequate support from health teams in the early stages of diagnosis, frequent hospitalisation and the postdischarge process. Unfortunately, limited studies have been conducted in this field, and the Iranian society lacks a comprehensive support programme for these families after leaving treatment centres or home care teams. Therefore, it is necessary to identify and redefine the needs of these families for better care and support in Iran. Methods and Analysis: A mixed-method research design with an exploratory sequential approach will be used in this study. The study consists of three stages: stage (1) the qualitative phase (conventional content analysis and scoping review); stage (2) the programme design phase (development of a support programme) and stage (3) the quantitative phase (validation of the programme through the Delphi method). In the first stage, data will be collected through interviews. Key concepts, evidence and gaps in research will also be identified, collected and analysed through a scoping review. In the second stage, a support programme will be designed based on the results of the content analysis of interviews and the findings from the scoping review. In the final phase, the study will aim to validate the designed programme through a Delphi study. Ethics and Dissemination: This study formed part of a Ph.D. degree and was approved by the ethics committee of Tabriz University of Medical Sciences (IR.TBZMED.REC.1402.395). Informed consent will be obtained from all study participants. Findings will be published in a peer-reviewed journal. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
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