'Not a panacea' - Expert perspectives on the concept of resilience and its potential for palliative care.

Autor: Maus K; Department of Palliative Medicine, University Hospital Bonn, Venusberg-Campus 1, Bonn 53127, Germany., Peusquens F; Department of Palliative Medicine, University Hospital Bonn, Bonn, Germany., Kriegsmann-Rabe M; Centre for Entrepreneurship, Innovation and SMEs, Bonn-Rhein-Sieg University of Applied Sciences, Sankt Augustin, Germany., Matthias JK; Department of Psychosomatic Medicine and Psychotherapy, University Hospital Bonn, Bonn, Germany., Ateş G; Institute for Digitalization and General Practice, University Hospital RWTH Aachen, Aachen, Germany., Jaspers B; Department of Palliative Medicine, University Hospital Bonn, Bonn, Germany.; Department of Palliative Medicine, University Medical Center Göttingen, Göttingen, Germany., Geiser F; Department of Psychosomatic Medicine and Psychotherapy, University Hospital Bonn, Bonn, Germany., Radbruch L; Department of Palliative Medicine, University Hospital Bonn, Bonn, Germany.
Jazyk: angličtina
Zdroj: Palliative care and social practice [Palliat Care Soc Pract] 2024 May 27; Vol. 18, pp. 26323524241254839. Date of Electronic Publication: 2024 May 27 (Print Publication: 2024).
DOI: 10.1177/26323524241254839
Abstrakt: Background: Resilience is an increasingly used term in medicine and subject to various definitions, often not easy to grasp. There are established core concepts for patients receiving palliative care, for example, meaning in life, that have already been researched a lot. Resilience, relative to these concepts, is a new object of research in palliative care, where it has so far been used predominantly with regard to the well-being of teams.
Aim: To explore how experts in palliative care define the concept of resilience and its suitability for patients, significant others, and professionals.
Design: Qualitative study using summarizing content analysis according to Mayring.
Setting/participants: Twenty-one health and social care professionals with expertise caring for persons with life-threatening/limiting illnesses and their relatives were interviewed in three individual interviews and four focus groups. All conversations were recorded, transcribed, coded via MAXQDA, and validated by another researcher.
Results: Resilience has been described as something procedural, dynamic, individual, and flexible. In connection with well-known concepts such as posttraumatic growth or terms from the field of mindfulness, social environment or personal factors have also been linked to resilience. Resources such as spirituality can contribute to resilience, and resilience itself can function as a resource, for example, by contributing to quality of life. An active use of the term in practical work with patients or relatives is rare, but it is used in education or team measures. Limited lifespan can pose a challenge to an active use of the concept of resilience.
Conclusion: Resilience as a very individual approach provides added value to other core concepts of palliative care. Within the palliative context, the normative dimension of resilience must be well reflected. A broader definition of resilience is recommended, leaving room for everyone to find their own form of resilience. The concept of resilience in palliative care includes opportunities as well as risks and should, therefore, be implemented carefully, requiring specific training.
Competing Interests: The authors declare that there is no conflict of interest.
(© The Author(s), 2024.)
Databáze: MEDLINE
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