"Filling in the gap": A qualitative case study about identity construction of siblings of youth with a neurodisability.

Autor: Nguyen L; School of Physical and Occupational Therapy, McGill University, Montreal, Quebec, Canada.; School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada., Jack SM; School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada.; Offord Centre for Child Studies, Hamilton, Ontario, Canada., Davis H; Sibling Youth Advisory Council, Hamilton, Ontario, Canada., Bellefeuille S; Sibling Youth Advisory Council, Hamilton, Ontario, Canada., Arafeh D; Sibling Youth Advisory Council, Hamilton, Ontario, Canada., Di Rezze B; School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada., Ketelaar M; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, The Netherlands., Gorter JW; School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.; Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.; Department of Pediatrics, McMaster Children's Hospital, McMaster University, Hamilton, Ontario, Canada.
Jazyk: angličtina
Zdroj: Journal of adolescence [J Adolesc] 2024 Aug; Vol. 96 (6), pp. 1354-1367. Date of Electronic Publication: 2024 May 26.
DOI: 10.1002/jad.12353
Abstrakt: Introduction: In families of children with a neurodisability, siblings have unique experiences that can shape their identity. There is limited information about the developmental process of how siblings form their identity. This study aims to understand the identity construction of young siblings who have a sibling with a neurodisability.
Methods: As part of a patient-oriented research program, we engaged with our Sibling Youth Advisory Council in Canada. In this qualitative case study, data from semi-structured interviews augmented by photo elicitation and graphic elicitation of relational maps were analyzed using reflexive thematic analysis.
Results: Nineteen sibling participants (median age = 19 years, range = 14-33 years) reflected on the uniqueness of their role during childhood. During adolescence and emerging adulthood, they became closer with their sibling with a neurodisability and increased communication with their parents about how to care for their sibling with a neurodisability. These experiences influenced how they explored and began to reconcile their sibling identity with their professional and social identities.
Conclusion: Siblings of youth with a neurodisability discover their unique identity and require support in this developmental process. Future interventions could evaluate how supports for siblings can have an impact on the positive development of their identity.
(© 2024 The Author(s). Journal of Adolescence published by Wiley Periodicals LLC on behalf of Foundation for Professionals in Services to Adolescents.)
Databáze: MEDLINE
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