Understanding the Healthcare Needs of Living Kidney Donors Using the Picker Principles of Patient-centered Care: A Scoping Review.

Autor:	Loban K; MEDIC, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.; Division of Experimental Medicine, Department of Medicine, McGill University Health Centre, Montreal, QC, Canada., Milland T; MEDIC, Research Institute of the McGill University Health Centre, Montreal, QC, Canada., Hales L; Library Services, McGill University Health Centre, Montreal, QC, Canada., Lam NN; Division of Nephrology, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada., Dipchand C; Division of Nephrology, Department of Medicine, Dalhousie University, Halifax, NS, Canada., Sandal S; MEDIC, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.; Division of Experimental Medicine, Department of Medicine, McGill University Health Centre, Montreal, QC, Canada.; Division of Nephrology, Department of Medicine, McGill University Health Centre, Montreal, QC, Canada.
Jazyk:	angličtina
Zdroj:	Transplantation [Transplantation] 2025 Jan 01; Vol. 109 (1), pp. 110-122. Date of Electronic Publication: 2024 May 21.
DOI:	10.1097/TP.0000000000005080
Abstrakt:	Living kidney donors (LKDs) undertake a complex and multifaceted journey when pursuing donation and have several unmet healthcare needs. A comprehensive understanding of these needs across their entire donation trajectory can help develop a patient-centered care model. We conducted a scoping review to synthesize empirical evidence, published since 2000, on LKDs' experiences with healthcare from when they decided to pursue donation to postdonation care, and what they reported as their care needs. We categorized them according to the 8 Picker principles of patient-centered care. Of the 4514 articles screened, 47 were included. Ample literature highlighted the need for (1) holistic, adaptable, and linguistically appropriate approaches to education and information; (2) systematic, consistent, and proactive coordination and integration of care; and (3) self-management and preparation to optimize perioperative physical comfort. Some literature highlighted the need for (4) better continuity and transition of care postdonation. Two key unmet needs were the lack of (5) a holistic psychosocial evaluation predonation and predischarge to provide emotional support and alleviation of fear and anxiety; and (6) access to specialty and psychosocial services postdonation especially when adverse events occurred. Limited literature explored the principles of (7) respect for patients' values, preferences, and expressed needs; and (8) involvement of family and friends as caregivers. We summarize several unmet healthcare needs of LKDs throughout their donation journey and highlight knowledge gaps. Addressing them can improve their well-being and experiences, and potentially address inequities in living kidney donation and increase living donor kidney transplantation. Competing Interests: S.S. has received an education grant from Amgen Canada. The other authors declare no conflicts of interest. (Copyright © 2024 Wolters Kluwer Health, Inc. All rights reserved.)
Databáze:	MEDLINE
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