Development of the acne-specific quality of life questionnaire Quality of Life Relevance-Acne.
| Autor: | Chernyshov PV; Department of Dermatology and Venereology, National Medical University, Kiev, Ukraine., Sampogna F; Clinical Epidemiology Unit, Istituto Dermopatico dell'Immacolata IDI-IRCCS, Rome, Italy., Raimondi G; Clinical Epidemiology Unit, Istituto Dermopatico dell'Immacolata IDI-IRCCS, Rome, Italy.; Department of Developmental and Social Psychology, Sapienza University of Rome, Rome, Italy., Zouboulis CC; Departments of Dermatology, Venereology, Allergology and Immunology, Staedtisches Klinikum Dessau, Brandenburg Medical School Theodor Fontane and Faculty of Health Sciences Brandenburg, Dessau, Germany., Boffa MJ; Department of Dermatology, Mater Dei Hospital, Msida, Malta., Marron SE; Department of Dermatology, University Hospital Miguel Servet, Aragon Psychodermatology Research Group associated to Aragon Health Sciences Institute (IACS), Zaragoza, Spain., Manolache L; Dermatology, Dali Medical, Bucharest, Romania., Pustišek N; Children's Hospital Zagreb, Zagreb, Croatia., Bettoli V; Section of Dermatology, Department of Medical Sciences, University of Ferrara, Ferrara, Italy., Koumaki D; Department of Dermatology and Venereology, University Hospital of Heraklion, Heraklion, Greece., Bewley AP; Barts Health NHS Trust, London, UK.; Queen Mary University, London, UK., Dreno B; Department of Dermato-Oncology, Nantes Université, Univ Angers, INSERM, Immunology and New Concepts in ImmunoTherapy (INCIT), Nantes, France., Tomas-Aragones L; Department of Psychology, University of Zaragoza, Aragon Health Sciences Institute (IACS), Zaragoza, Spain. |
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| Jazyk: | angličtina |
| Zdroj: | JAAD international [JAAD Int] 2024 Mar 25; Vol. 16, pp. 9-17. Date of Electronic Publication: 2024 Mar 25 (Print Publication: 2024). |
| DOI: | 10.1016/j.jdin.2024.03.007 |
| Abstrakt: | Background: Participating members of the European Academy of Dermatology and Venereology Task Forces on quality of life (QoL) and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa initiated data collection in 9 European countries and formed the list of the most relevant topics for acne patients. Objective: The aim of this study was to develop a new acne-specific health-related QoL instrument based on the list of the most relevant topics for acne patients. Methods: After assessment by acne patients ( n = 715) on how clear and relevant the items in the prototype questionnaire were, a group of experts on acne and QoL performed discussions on items inclusion, which resulted in a series of 21 items. Then another group of acne patients ( n = 1502) filled in the new version of the instrument. A factor analysis was conducted on the 21-item version. Results: Three-factor model with 19 items indicated a satisfactory fit. The three dimensions were called: Socioemotional; Symptoms; Stigma and Suicidal thoughts. Limitations: Included patients and experts may not fully represent acne patients and health care professionals worldwide. Conclusion: A final 19-item version of the Quality of Life Relevance-Acne was developed. Competing Interests: None declared. (© 2024 by the American Academy of Dermatology, Inc. Published by Elsevier Inc.) |
| Databáze: | MEDLINE |
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