The lived experience of mental disorders in adolescents: a bottom-up review co-designed, co-conducted and co-written by experts by experience and academics.

Autor: Fusar-Poli P; Early Psychosis: Interventions and Clinical-detection (EPIC) Lab, Department of Psychosis Studies, King's College London, London, UK.; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.; OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK.; Department of Psychiatry and Psychotherapy, University Hospital, Ludwig-Maximilian-University, Munich, Germany., Estradé A; Early Psychosis: Interventions and Clinical-detection (EPIC) Lab, Department of Psychosis Studies, King's College London, London, UK., Esposito CM; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Rosfort R; S. Kierkegaard Research Centre, University of Copenhagen, Copenhagen, Denmark., Basadonne I; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Mancini M; Department of Psychological Sciences, Health and Territory, G. D'Annunzio University of Chieti and Pescara, Chieti, Italy., Stanghellini G; Department of Health Sciences, University of Florence, Florence, Italy.; Diego Portales University, Santiago, Chile., Otaiku J; Young Person's Mental Health Advisory Group, King's College London, London, UK., Olanrele O; OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK., Allen L; OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK., Lamba M; Global Mental Health Peer Network, Delhi, India., Alaso C; Global Mental Health Peer Network, Nairobi, Kenya., Ieri J; Global Mental Health Peer Network, Nairobi, Kenya., Atieno M; Global Mental Health Peer Network, Nairobi, Kenya., Oluoch Y; Global Mental Health Peer Network, Nairobi, Kenya., Ireri P; Global Mental Health Peer Network, Nairobi, Kenya., Tembo E; Global Mental Health Peer Network, Lusaka, Zambia.; University of Zambia, Lusaka, Zambia., Phiri IZ; Global Mental Health Peer Network, Lusaka, Zambia., Nkhoma D; Global Mental Health Peer Network, Lusaka, Zambia., Sichone N; Global Mental Health Peer Network, Lusaka, Zambia., Siadibbi C; Global Mental Health Peer Network, Lusaka, Zambia.; Psychology Association of Zambia, Lusaka, Zambia., Sundi PRIO; Lusaka Apex Medical University, Lusaka, Zambia., Ntokozo N; Global Mental Health Peer Network, Bulawayo, Zimbabwe.; Youth Support Network Trust, Bulawayo, Zimbabwe., Fusar-Poli L; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Floris V; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Mensi MM; National Neurological Institute, IRCCS C. Mondino Foundation, Pavia, Italy., Borgatti R; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.; National Neurological Institute, IRCCS C. Mondino Foundation, Pavia, Italy., Damiani S; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Provenzani U; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Brondino N; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy., Bonoldi I; South London and Maudsley NHS Foundation Trust, London, UK.; Department of Psychosis Studies, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK., Radua J; Institut d'Investigacions Biomediques August Pi i Sunyer, CIBERSAM, Instituto de Salud Carlos III, University of Barcelona, Barcelona, Spain., Cooper K; Department of Clinical, Educational and Health Psychology, University College London, London, UK., Shin JI; Department of Pediatrics, Yonsei University College of Medicine, Seoul, Republic of Korea., Cortese S; Centre for Innovation in Mental Health, School of Psychology, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.; Clinical and Experimental Sciences (CNS and Psychiatry), Faculty of Medicine, University of Southampton, Southampton, UK.; Hassenfeld Children's Hospital at NYU Langone, New York University Child Study Center, New York, NY, USA.; Solent NHS Trust, Southampton, UK.; Department of Precision and Regenerative Medicine and Jonic Area, University of Bari, Bari, Italy., Danese A; Social, Genetic and Developmental Psychiatry Centre and Department of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.; National and Specialist Child and Adolescent Mental Health Service Clinic for Trauma, Anxiety and Depression, South London and Maudsley NHS Foundation Trust, London, UK., Bendall S; Orygen, Melbourne, VIC, Australia.; Centre for Youth Mental Health, University of Melbourne, Melbourne, VIC, Australia., Arango C; Institute of Psychiatry and Mental Health, Department of Child and Adolescent Psychiatry, Hospital General Universitario G. Marañón, School of Medicine, Universidad Complutense, CIBERSAM, Madrid, Spain., Correll CU; Department of Child and Adolescent Psychiatry, Universitätsmedizin Berlin, Berlin, Germany.; Departments of Psychiatry and Molecular Medicine, Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, USA.; Department of Psychiatry, Zucker Hillside Hospital, Northwell Health, Glen Oaks, NY, USA., Maj M; Department of Psychiatry, University of Campania 'Luigi Vanvitelli', Naples, Italy.
Jazyk: angličtina
Zdroj: World psychiatry : official journal of the World Psychiatric Association (WPA) [World Psychiatry] 2024 Jun; Vol. 23 (2), pp. 191-208.
DOI: 10.1002/wps.21189
Abstrakt: We provide here the first bottom-up review of the lived experience of mental disorders in adolescents co-designed, co-conducted and co-written by experts by experience and academics. We screened first-person accounts within and outside the medical field, and discussed them in collaborative workshops involving numerous experts by experience - representing different genders, ethnic and cultural backgrounds, and continents - and their family members and carers. Subsequently, the material was enriched by phenomenologically informed perspectives and shared with all collaborators. The inner subjective experience of adolescents is described for mood disorders, psychotic disorders, attention-deficit/hyperactivity disorder, autism spectrum disorders, anxiety disorders, eating disorders, externalizing disorders, and self-harm behaviors. The recollection of individuals' past histories also indexes the prodromal (often transdiagnostic) features predating the psychiatric diagnosis. The experience of adolescents with mental disorders in the wider society is described with respect to their family, their school and peers, and the social and cultural context. Furthermore, their lived experience of mental health care is described with respect to receiving a diagnosis of mental disorder, accessing mental health support, receiving psychopharmacological treatment, receiving psychotherapy, experiencing peer support and mental health activism, and achieving recovery. These findings can impact clinical practice, research, and the whole society. We hope that this co-designed, co-conducted and co-written journey can help us maintain our commitment to protecting adolescents' fragile mental health, and can help them develop into a healthy, fulfilling and contributing adult life.
(© 2024 World Psychiatric Association.)
Databáze: MEDLINE
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