Financial Stressors for Parents of Children and Emerging Adults With Congenital Heart Disease: A Qualitative Study.

Autor: Delaney AE, Fu MR, Conway C, Marshall AC, Lindberg J, Thiagarajan RR, Glazer S
Jazyk: angličtina
Zdroj: Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners [J Pediatr Health Care] 2024 Jul-Aug; Vol. 38 (4), pp. 574-585. Date of Electronic Publication: 2024 Apr 24.
DOI: 10.1016/j.pedhc.2024.04.001
Abstrakt: Introduction: Congenital heart disease (CHD) is the most prevalent congenital disability globally. This study aimed to describe parents' perspectives on financial stressors related to having a child with CHD using a descriptive qualitative approach.
Method: Qualitative data were obtained from parents of children with CHD in a cross-sectional web-based survey study. Iterative data analysis was used to develop essential themes that enabled a rich description of 147 parents' perspectives.
Results: Parents identified five financial stressors: perpetual worries about health insurance, facing the dilemma of "making too much money," struggling to balance work, worrying over having an emerging adult with CHD, and constant constraints because of financial needs.
Discussion: As experts in pediatric care, pediatric advanced practice providers need to work with policymakers to provide further financial assistance and sufficient insurance coverage for families that struggle to balance finances for the whole family and children with CHD.
Competing Interests: CONFLICTS OF INTEREST None to report.
(Copyright © 2024 The Authors. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
Externí odkaz: