Benefits of Respite Services on the Psycho-Emotional State of Families of Children Admitted to Hospice Palliative Care Unit: Preliminary Study on Parents' Perceptions.

Autor:	Hizanu Dumitrache M; Doctoral School of Biomedical Sciences, Faculty of Medicine and Pharmacy, 'Dunărea de Jos' University of Galați, 47 Domnească Street, 800008 Galați, Romania., Boeriu E; Department of Pediatrics, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania.; Department of Oncology and Hematology, 'Louis Turcanu' Emergency Clinical Hospital for Children, Iosif Nemoianu Street 2, 300011 Timisoara, Romania., Tanasescu S; Department of Pediatrics, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania., Balan A; Department of Pediatrics, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania., Oprisoni LA; Department of Pediatrics, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania., Popa MV; Doctoral School of Biomedical Sciences, Faculty of Medicine and Pharmacy, 'Dunărea de Jos' University of Galați, 47 Domnească Street, 800008 Galați, Romania., Gutu C; Clinical Medical Department, Faculty of Medicine and Pharmacy, 'Dunărea de Jos' University of Galați, 47 Domnească Street, 800008 Galați, Romania., Vulcanescu DD; Department of Microbiology, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania.; Multidisciplinary Research Center on Antimicrobial Resistance (MULTI-REZ), Microbiology Department, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania., Bagiu IC; Department of Microbiology, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania.; Multidisciplinary Research Center on Antimicrobial Resistance (MULTI-REZ), Microbiology Department, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania., Bagiu RV; Department of Hygiene, Preventive Medicine Study Center, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Sq. Nr.2, 300041 Timisoara, Romania., Dragomir TL; Medical Semiology II Discipline, Internal Medicine Department, 'Victor Babes' University of Medicine and Pharmacy, Eftimie Murgu Square 2, 300041 Timisoara, Romania., Boru C; Department of Medicine, 'Vasile Goldis' University of Medicine and Pharmacy, 310414 Arad, Romania., Avram CR; Department of Residential Training and Post-University Courses, 'Vasile Goldis' Western University, 310414 Arad, Romania., Duceac LD; Clinical Medical Department, Faculty of Medicine and Pharmacy, 'Dunărea de Jos' University of Galați, 47 Domnească Street, 800008 Galați, Romania.
Jazyk:	angličtina
Zdroj:	Healthcare (Basel, Switzerland) [Healthcare (Basel)] 2024 Mar 29; Vol. 12 (7). Date of Electronic Publication: 2024 Mar 29.
DOI:	10.3390/healthcare12070748
Abstrakt:	Background: In children's palliative care, the term "respite" refers to a temporary break offered to primary caregivers of a child with a life-limiting illness. The aim of this study was to assess the perceptions of parents who have benefited from respite care services in the Lumina Association, Bacău hospice unit and the benefits it can bring in improving their psycho-emotional state. Methods: The study consisted of quantitative research involving 34 parents/caregivers who responded to a questionnaire with 26 questions, and qualitative research which involved the organization of a focus group with 12 parents who benefited from respite services. Results: The use of respite services was associated with a significant reduction of psycho-emotional distress on the part of primary caregivers; 91% of respondents said that this type of service reduces the level of psycho-emotional stress. Conclusions: All participants in the study confirmed that the most important benefit of respite is the time gained to care for family and health. The development of respite services could reduce the risk of emotional exhaustion and mental health problems. Competing Interests: The authors declare no conflicts of interest.
Databáze:	MEDLINE
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