'There is still a part of me that would love to be the old me again', how do adolescents and young adults (AYA) experience cancer-related bodily changes: a phenomenological interview study.

Autor: Hendriks RTJ; Department of Culture Studies, School of Humanities and Digital Sciences, Tilburg University, 5000 LE, Tilburg, the Netherlands.; Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, the Netherlands., van Eenbergen MCHJ; Department of Research and Development, Netherlands Comprehensive Cancer Organization, 3511 DT, Utrecht, the Netherlands.; Department of Communication and Cognition, Tilburg University, 5000 LE, Tilburg, the Netherlands., de Boer ML; Department of Culture Studies, School of Humanities and Digital Sciences, Tilburg University, 5000 LE, Tilburg, the Netherlands., Sleeman SHE; Dutch AYA 'Young & Cancer' Care Network, 3511 DT, Utrecht, the Netherlands., Boll D; Department of Research and Development, Netherlands Comprehensive Cancer Organization, 3511 DT, Utrecht, the Netherlands.; Department of Communication and Cognition, Tilburg University, 5000 LE, Tilburg, the Netherlands.; Department of Gynaecology, Catharina Hospital, Eindhoven, the Netherlands., Husson O; Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, the Netherlands. o.husson@erasmusmc.nl.; Department of Surgical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, 3015 GD, Rotterdam, the Netherlands. o.husson@erasmusmc.nl., Bootsma TI; Department of Medical Oncology, Netherlands Cancer Institute-Antoni Van Leeuwenhoek, 1066 CX, Amsterdam, the Netherlands.; Department of Surgical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Center, 3015 GD, Rotterdam, the Netherlands.
Jazyk: angličtina
Zdroj: Journal of cancer survivorship : research and practice [J Cancer Surviv] 2024 Apr 04. Date of Electronic Publication: 2024 Apr 04.
DOI: 10.1007/s11764-024-01578-3
Abstrakt: Purpose: Due to the increase in both cancer incidence and overall survival rates, more adolescents and young adults (AYAs) have to live with the effects that their cancer diagnosis and following treatments have on their bodies. This qualitative phenomenological study aimed to gain more insight into the way AYAs experience these effects and how they respond to these effects.
Methods: Semi-structured interviews with a sample of 11 AYAs with an age range of 25-41 years at the time of the interview, who were diagnosed with different types of cancer, were conducted. Participants were recruited via social media and patient associations until data saturation was reached. A topic guide with open-ended questions about lived experiences was used. Interpretative phenomenological analysis (IPA) was performed to analyse the transcripts.
Results: We identified six Group Experiential Themes based on different ways AYAs experience their bodies: (1) self-conscious body, (2) vulnerable body, (3) adapting to the body, (4) uncontrollable body, (5) remembering the body and (6) shared bodies.
Conclusion: This study offers in-depth insight into the bodily experiences of AYAs after cancer and how they respond to these changes from a phenomenological point of view.
Implications for Cancer Survivors: This knowledge could be beneficial to provide more guidance for AYAs during and after their illness, by focussing on personalised psychological (after)care.
(© 2024. The Author(s).)
Databáze: MEDLINE
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