Dermatology Life Quality Index survey in patients with Down syndrome and caregivers.

Autor: Dykman M; University of Minnesota Medical School, Minneapolis, Minnesota, USA., Ernst M; University of Minnesota Medical School, Minneapolis, Minnesota, USA., Rakasiwi T; Department of Dermatology, Dartmouth-Hitchcock Medical Center, Children's Hospital at Dartmouth, Manchester, New Hampshire, USA., Buros Stein A; Pediatric Dermatology Research Alliance, Portland, Oregon, USA., Satin DJ; Department of Family Medicine and Community Health, Center for Bioethics, University of Minnesota, Minneapolis, Minnesota, USA., Holland KE; Department of Dermatology, Children's Hospital of Wisconsin, Medical College of Wisconsin, Milwaukee, Wisconsin, USA., Santoro SL; Division of Medical Genetics, Department of Pediatrics, Massachusetts General Hospital, Boston, Massachusetts, USA., Rork JF; Department of Dermatology, Dartmouth-Hitchcock Medical Center, Children's Hospital at Dartmouth, Manchester, New Hampshire, USA.
Jazyk: angličtina
Zdroj: Pediatric dermatology [Pediatr Dermatol] 2024 Jul-Aug; Vol. 41 (4), pp. 671-673. Date of Electronic Publication: 2024 Mar 18.
DOI: 10.1111/pde.15593
Abstrakt: Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.
(© 2024 Wiley Periodicals LLC.)
Databáze: MEDLINE
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