End of life care in a level IV outborn neonatal intensive care unit.

Autor: Groden CM; Section of Neonatology, University of Chicago, Chicago, IL, USA. catherinegroden@gmail.com., Raed M; Division of Palliative Care, Community Health Network, Indianapolis, IN, USA., Helft P; Division of Hematology-Oncology, Indiana University School of Medicine, Indianapolis, IN, USA., Allen JD; Division of Neonatal-Perinatal Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.
Jazyk: angličtina
Zdroj: Journal of perinatology : official journal of the California Perinatal Association [J Perinatol] 2024 Jul; Vol. 44 (7), pp. 1022-1028. Date of Electronic Publication: 2024 Mar 14.
DOI: 10.1038/s41372-024-01930-6
Abstrakt: Objective: Describe care surrounding the end of life (EOL) in the neonatal intensive care unit (NICU).
Study Design: Retrospective chart review of 208 infants who died in a level IV referral-only NICU over 5 years.
Results: A goals of care (GOC) conversation was documented before the day of death for 63% of infants. 73% died following withdrawal of life-sustaining treatment (WD); 13% died in a code. The median age at death was 17.5 days. 72% were held by a parent at EOL. 94% of families desired formal memory-making. We identified associations with mode of death and parental holding at death, including: WD was associated with palliative care consultation, early GOC conversations, and increased unit-specific length of stay. Holding was associated with chaplain visits, memory-making, and increased home-to-hospital distance.
Conclusion: We present a detailed description of EOL care in an outborn NICU, including novel data on parental holding and memory-making.
(© 2024. The Author(s), under exclusive licence to Springer Nature America, Inc.)
Databáze: MEDLINE
Externí odkaz: