Patient, Family, Caregiver, and Community Engagement in Research: A Sensibility Evaluation of a Novel Infographic and Planning Guide.

Autor:	Giannini AT; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada., Leong M; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada., Chan K; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada., Ghaltaei A; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada., Graham E; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada., Robinson C; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada., Skorska MN; Child & Youth Psychiatry, Centre for Addiction and Mental Health, Toronto, Ontario, Canada., Cross A; School of Rehabilitation Science, Department of Paediatrics, CanChild Centre for Childhood Disability Research, McMaster University and the Institute of Applied Health Sciences, CanChild Centre for Childhood Disability Research, Hamilton, Ontario, Canada., Gabison S; Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada.; KITE, Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
Jazyk:	angličtina
Zdroj:	Physiotherapy Canada. Physiotherapie Canada [Physiother Can] 2024 Mar 06; Vol. 76 (1), pp. 64-77. Date of Electronic Publication: 2024 Mar 06 (Print Publication: 2024).
DOI:	10.3138/ptc-2021-0057
Abstrakt:	Background: Engaging patients, families, caregivers, and the community (PFCCs) throughout the research cycle ensures that research is meaningful for the target population. Although tools have been developed to promote PFCC engagement, many are lengthy, complex, and lack recommended behaviours. This study evaluated the sensibility of an infographic and accompanying planning guide for facilitating engagement of PFCCs in research. Methods: Thirteen rehabilitation researchers reviewed the PFCC engagement tool and planning guide, participated in a semi-structured interview, and completed a 10-item sensibility questionnaire. Interviews were transcribed, imported into NVivo, and analyzed using direct content analysis. Median scores and proportions of responses for each of the 10 items in the questionnaire were calculated. Results: Median scores for all questionnaire items were ≥ 4 on a 7-point Likert Scale. Participants reported the tool was easy to navigate, contained relevant items to promote PFCC engagement, and followed a logical sequence. Suggested modifications of the tool related to formatting, design, and changing the title. Conclusions: The tool was deemed sensible for overt format, purpose and framework, face and content validity, and ease of usage and provides guidance to engage PFCCs across the research cycle. Further studies are recommended to assess the effectiveness of the tool to engage PFCCs in research. Competing Interests: Competing Interests: None declared. (© Canadian Physiotherapy Association, 2024.)
Databáze:	MEDLINE
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