Diversity, Equity, and Inclusion in Patient and Family Advisory Councils: Advancing Best Practice in Children's Hospitals.

Autor: Dardess P, Dokken DL, Unaka NI, Casillas CA, Rouse L, Patel U, Rodriguez LR, Beck AF
Jazyk: angličtina
Zdroj: Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners [J Pediatr Health Care] 2024 Mar-Apr; Vol. 38 (2), pp. 184-193.
DOI: 10.1016/j.pedhc.2023.11.006
Abstrakt: Introduction: This qualitative research study explored practices that support and advance diverse membership in Patient and Family Advisory Councils (PFACs) in children's hospitals and the involvement of PFACs in organization-level diversity, equity, and inclusion work.
Method: This study consisted of a focused literature review and 17 key informant interviews. The study sought to identify important learnings about (1) recruiting and supporting patient and family advisors (PFAs) from historically marginalized populations and (2) ways to develop and sustain meaningful partnerships with PFAs and PFACs in diversity, equity, and inclusion work.
Results: The study findings highlighted a number of best practices for hospitals to adopt, including more actively reaching out to communities served, addressing barriers to participation through approaches and structures such as specialty PFACs and "tiered" options for participation by PFAs, and co-creation of inclusive environments.
Discussion: To move forward with this work, additional research, true commitment from health care organizations, and shared guidance and tools for the field are needed.
Competing Interests: CONFLICTS OF INTEREST None to report. The authors are grateful to the interview participants who so generously shared their experiences and expertise. The authors also thank the individuals who served on the Advisory Committee for this project and to our program officers at the Lucile Packard Foundation for Children's Health, Allison Gray (Senior Program Officer) and Hannah Au (Program Associate).
(Copyright © 2023 The Authors. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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