Strategies for engaging patients in co-design of an intervention.

Autor: Zogas A; Center for Healthcare Organization and Implementation Research, VA Boston Healthcare System, Boston, MA, USA; Section of General Internal Medicine, Boston University Chobanian & Avedisian School of Medicine, Boston, MA, USA. Electronic address: anna.zogas@va.gov., Sitter KE; Center for Healthcare Organization and Implementation Research, VA Bedford Healthcare System, Bedford, MA, USA., Barker AM; Center for Healthcare Organization and Implementation Research, VA Bedford Healthcare System, Bedford, MA, USA., Fix GM; Section of General Internal Medicine, Boston University Chobanian & Avedisian School of Medicine, Boston, MA, USA; Center for Healthcare Organization and Implementation Research, VA Bedford Healthcare System, Bedford, MA, USA., Khanna A; Center for Healthcare Organization and Implementation Research, VA Bedford Healthcare System, Bedford, MA, USA; University of Massachusetts T.H. Chan School of Medicine, Worcester, MA, USA., Herbst AN; Center for Healthcare Organization and Implementation Research, VA Bedford Healthcare System, Bedford, MA, USA., Vimalananda VG; Center for Healthcare Organization and Implementation Research, VA Bedford Healthcare System, Bedford, MA, USA; Section of Endocrinology, Boston University Chobanian & Avedisian School of Medicine, Boston, MA, USA.
Jazyk: angličtina
Zdroj: Patient education and counseling [Patient Educ Couns] 2024 Jun; Vol. 123, pp. 108191. Date of Electronic Publication: 2024 Feb 06.
DOI: 10.1016/j.pec.2024.108191
Abstrakt: Objective: We provide practical guidance about using co-design methods to collaborate with patients to create patient-facing interventions, which others can use when undertaking similar projects.
Methods: This is a narrative review synthesizing co-design principles and published literature with our experience working alongside five Veteran patients of the U.S. Department of Veterans Affairs in New England to co-design a portfolio of patient-facing materials to improve patient-centered care coordination. Our process took 12 weeks (April - June 2022) and was conducted entirely via video conference.
Results: Co-design is a participatory research method. Its principles include sharing power over the research process and products, agency for all participants, embracing a plurality of forms of knowledge, and mutual and reciprocal benefit. We describe three stages of the co-design process (preparatory work; design and development; feedback and closure), strategies and techniques we used at each stage, challenges we faced, and considerations for addressing them.
Conclusion: Co-designing patient-facing interventions blends different forms of knowledge to produce practical, contextually specific interventions with ownership by the people who will use them.
Practice Implications: Co-design is a feasible methodology for most health services research teams whose goal is to intensify patient engagement in research.
Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(Published by Elsevier B.V.)
Databáze: MEDLINE
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