| Autor: |
Hayes OS; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK., El Baou C; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK.; Adapt Lab, Research Department of Clinical, Educational and Health Psychology, UCL, London WC1E 7HB, UK., Hardy CJD; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK., Camic PM; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK., Brotherhood EV; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK., Harding E; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK., Crutch SJ; Dementia Research Centre, UCL Queen Square Institute of Neurology, UCL, London WC1N 3AR, UK. |
| Abstrakt: |
We used quantitative text analysis to examine conversations in a series of online support groups attended by care partners of people living with rare dementias (PLWRD). We used transcripts of 14 sessions (>100,000 words) to explore patterns of communication in trained facilitators' ( n = 2) and participants' ( n = 11) speech and to investigate the impact of session agenda on language use. We investigated the features of their communication via Poisson regression and a clustering algorithm. We also compared their speech with a natural speech corpus. We found that differences to natural speech emerged, notably in emotional tone (d = -3.2, p < 0.001) and cognitive processes (d = 2.8, p < 0.001). We observed further differences between facilitators and participants and between sessions based on agenda. The clustering algorithm categorised participants' contributions into three groups: sharing experience, self-reflection, and group processes. We discuss the findings in the context of Social Comparison Theory. We argue that dedicated online spaces have a positive impact on care partners in combatting isolation and stress via affiliation with peers. We then discuss the linguistic mechanisms by which social support was experienced in the group. The present paper has implications for any services seeking insight into how peer support is designed, delivered, and experienced by participants. |
