Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be?

Autor:	Russell B; Translational Oncology and Urology Research, King's College London, London, UK., Beyer K; Department of Urology, Erasmus MC Cancer Institute, University Medical Center, Rotterdam, The Netherlands., Lawlor A; Translational Oncology and Urology Research, King's College London, London, UK., Roobol MJ; Department of Urology, Erasmus MC Cancer Institute, University Medical Center, Rotterdam, The Netherlands., Venderbos LDF; Department of Urology, Erasmus MC Cancer Institute, University Medical Center, Rotterdam, The Netherlands., Remmers S; Department of Urology, Erasmus MC Cancer Institute, University Medical Center, Rotterdam, The Netherlands., Briers E; Patient advocate, Hasselt, Belgium., MacLennan SJ; Academic Urology Unit, University of Aberdeen, Aberdeen, UK., MacLennan S; Academic Urology Unit, University of Aberdeen, Aberdeen, UK., Omar MI; Academic Urology Unit, University of Aberdeen, Aberdeen, UK., Van Hemelrijck M; Translational Oncology and Urology Research, King's College London, London, UK.
Jazyk:	angličtina
Zdroj:	European urology open science [Eur Urol Open Sci] 2023 Dec 19; Vol. 59, pp. 27-29. Date of Electronic Publication: 2023 Dec 19 (Print Publication: 2024).
DOI:	10.1016/j.euros.2023.11.004
Abstrakt:	Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient Summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. (© 2023 The Authors. Published by Elsevier B.V. on behalf of European Association of Urology.)
Databáze:	MEDLINE
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