Walking the talk for dementia: A unique immersive, embodied, and multi-experiential initiative.

Autor: Aguzzoli Peres F; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., Haas AN; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; Department of Physical Education, Physiotherapy and Dance, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brasil., Martha AD; Atlantic Fellow for Health Equity in Southeast Asia, the Equity Initiative, Bangkok, Thailand., Chan M; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; Institute for Research on Socio-Economic Inequality, University of Luxembourg, Esch-sur-Alzette, Luxembourg., Steele M; Atlantic Fellows for Social Equity, Australia, New Zealand and the Pacific, University of Melbourne, Melbourne, Melbourne, Austrália., Ferretti MT; Women's Brain Project, Guntershausen, Guntershausen, Switzerland., Ngcobo NN; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; Department of Psychiatry, School of Clinical Medicine, University of KwaZulu-Natal, Durban, KwaZulu-Natal, South Africa., Ilinca S; World Health Organization, Regional Office for Europe, Copenhagen, Denmark., Domínguez-Vivero C; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; Servicio Galego de Saúde, Galicia, Spain., Leroi I; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; School of Medicine, Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland., Sajnani N; Program in Drama Therapy, Jameel Arts & Health Lab, New York University, New York, New York, USA., Zimmer ER; Graduate Program in Biological Sciences: Biochemistry (PPGBioq) and Pharmacology and Therapeutics (PPFT), Department of Pharmacology, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brazil.; The McGill University Research Centre for Studies in Aging, McGill University, Montreal, Canada.; Brain Institute of Rio Grande do Sul - Pontifícia Universidade Católica do Rio Grande do Sul, Porto Alegre, Brazil., Kornhuber A; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland., Kalache A; International Longevity Center Brazil, Rio de Janeiro, RJ, Brazil., Holtzhausen B; Alzheimer Dementia Namibia, Windhoek, Namibia., Tristão-Pereira C; Spanish National Center for Cardiovascular Research, Madrid, Spain., Dupont C; VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel (VUB), Brussel, Belgium.; Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), Brussel, Belgium., Cohen D; Right to Music, New York, USA., de Jong D; DA-RE Health Innovation, Heerenveen, Friesland, Netherlands., Facal D; Departamento de Psicoloxía Evolutiva e da Educación, IDIS, Universidade de Santiago de Compostela, Santiago de Compostela, Spain., O'Sullivan D; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., Mateus E; Febraz - Brazilian Federation of Alzheimer's Associations, São Paulo, SP, Brasil., Roso E; Università degli Studi di Firenze, Florence, Italy., Estrop E; Voices for Hope, Dementia Singapore, Singapore, Singapore., Gamba G; Associação Crônicos do Dia a Dia (CDD), São Paulo, SP, Brasil., San Martin Elexpe G; Associação Crônicos do Dia a Dia (CDD), São Paulo, SP, Brasil., Ulises Diaz Hernández H; Federación Alzheimer Galicia, Santiago de Compostela, Spain., Quaid H; Lewy Body Ireland, Lloyd Building - Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland., Govia I; Caribbean Institute for Health Research, The University of the West Indies, Kingston 7, Jamaica., Barbosa J; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., García Del Moral J; Confederación Española de Alzheimer (CEAFA), Pamplona, Navarra, Spain., Miller J; London School of Economics, London, UK., García García JA; Confederación Española de Alzheimer (CEAFA), Pamplona, Navarra, Spain., Quaid K; Lewy Body Ireland, Lloyd Building - Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland., Navarro L; Health Research Institute of Santiago de Compostela (IDIS), Pamplona, Spain., García LZ; Confederación Española de Alzheimer (CEAFA), Pamplona, Navarra, Spain., Waters L; Voices of Alzheimer, Chicago, Illinois, USA., Molete L; PHELA Foundation, Johannesburg, South Africa.; Tekano, Cape Town, South Africa., Godoy ME; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., Sigauke M; Community Hope Trust, 361B/7 - Mbizo, Kwekwe, Midlands, Zimbabwe., de Ataide Schulte MW; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., Estrop P; Voices for Hope, Dementia Singapore, Singapore, Singapore., San Martin Elexpe Cardoso P; Associação Crônicos do Dia a Dia (CDD), São Paulo, SP, Brasil., Perez R; Hospital Dr. R.A. Calderón Guardia, San José, Costa Rica., Patterson R; Dominica Dementia Foundation, Dominica, Dominica., Chakrabarti R; Trinity Business School, Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland., Wong R; Dementia Singapore, Singapore, Singapore., Marsillas S; Matia Institute of Gerontology, Madrid, Spain., Lowe S; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., Rego TS; Federación Alzheimer Galicia, Santiago de Compostela, Spain., Farombi T; Chief Tony Anenih Geriatric Center, University College Hospital, Ibadan, Oyo, Nigeria., Montgomery T; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile., In 't Veen T; TimeSteps, The Netherlands, Europalaan 100, Utrecht, The Netherlands., Yanni V; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA., Weidner W; Alzheimer's Disease International, London, UK., Ibanez A; Global Brain Health Institute (GBHI), University of California San Francisco (UCSF), San Francisco, USA.; Trinity College Dublin, the University of Dublin College Green, Dublin 2, Ireland.; Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibañez, Las Condes, Chile.; Cognitive Neuroscience Center (CNC), Universidad de San Andrés and CONICET Calle Vito Dumas 284, Buenos Aires, Argentina.
Jazyk: angličtina
Zdroj: Alzheimer's & dementia : the journal of the Alzheimer's Association [Alzheimers Dement] 2024 Mar; Vol. 20 (3), pp. 2309-2322. Date of Electronic Publication: 2024 Jan 26.
DOI: 10.1002/alz.13644
Abstrakt: Coping with dementia requires an integrated approach encompassing personal, health, research, and community domains. Here we describe "Walking the Talk for Dementia," an immersive initiative aimed at empowering people with dementia, enhancing dementia understanding, and inspiring collaborations. This initiative involved 300 participants from 25 nationalities, including people with dementia, care partners, clinicians, policymakers, researchers, and advocates for a 4-day, 40 km walk through the Camino de Santiago de Compostela, Spain. A 2-day symposium after the journey provided novel transdisciplinary and horizontal structures, deconstructing traditional hierarchies. The innovation of this initiative lies in its ability to merge a physical experience with knowledge exchange for diversifying individuals' understanding of dementia. It showcases the transformative potential of an immersive, embodied, and multi-experiential approach to address the complexities of dementia collaboratively. The initiative offers a scalable model to enhance understanding, decrease stigma, and promote more comprehensive and empathetic dementia care and research.
(© 2024 The Authors. Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.)
Databáze: MEDLINE