Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey.

Autor:	Pedraza EC; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland., Raguindin PF; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland., Hendriks MJ; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland., Vokinger AK; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland., De Clercq E; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland., Rüesch K; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland., Hjorth L; Department of Clinical Sciences Lund, Paediatrics, Skane University Hospital, Lund University, Lund, Sweden., von Bueren AO; Department of Paediatrics, Obstetrics and Gynaecology Division of Paediatric Haematology and Oncology University Hospital of Geneva, Switzerland., Tinner EM; Paediatric Haematology/Oncology, Department of Paediatrics, Inselspital, Bern University Hospital, University of Bern, Switzerland., Bergstraesser E; Department of Paediatrics, Paediatric Palliative Care, University Children's Hospital Zurich, University of Zurich, Switzerland., Wiener L; Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, United States., Michel G; Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Jazyk:	angličtina
Zdroj:	EJC paediatric oncology [EJC Paediatr Oncol] 2023 Dec; Vol. 2. Date of Electronic Publication: 2023 Nov 14.
DOI:	10.1016/j.ejcped.2023.100125
Abstrakt:	Background: Palliative care (PC) is an integral part of cancer treatment. However, data on service availability is limited in childhood cancers. Aim: To describe the availability of PC services in paediatric oncology centres across Europe, and to identify barriers and facilitators for implementing and providing paediatric palliative care (PPC). Methods: Paediatric oncology centres across Europe were invited to complete an online questionnaire. Results: A total of 158 paediatric oncology centres from 27 European countries participated. More than half of the centres (n=102, 64.6%) reported offering specialised PPC (defined as 24/7 coverage services with specialized physician and a multidisciplinary team). Most centres included a multidisciplinary care team (n=123, 80.9%) and PC at home (n=105, 69.1%). In 38.7% centres, service capacity was reported to be lower than demand. In most centres, PC consultation was initiated for a refractory neoplasm (n=126, 81.2%). Few centres (n=11, 7.1%) offered PC consultation at the time of a new cancer diagnosis. Eighty-two centres (52.6%) reported having bereavement services. Negative parental perception (n=99, 64.7%) and late referrals (n=91, 59.5%) were major barriers to implementation perceived by health care providers. Conclusion: Our results suggest that specialised PPC is available in more than half of paediatric oncology settings across Europe. Although half have had PPC available for >10 years, many cannot fulfil the demand for service. Barriers to implementation (i.e., parental education, staff training) should be addressed, with resources and services further expanded to cover the demand for PPC, including bereavement care. Competing Interests: Author declarations (includes financial disclosures) All authors declare no conflicts of interest Declaration of interests The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
Databáze:	MEDLINE
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