Spina Bifida Global Learning Collaborative: Educating the next generation of clinicians, researchers, and advocates.

Autor: Dosa NP; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., Ahmed YS; ReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands., Alriksson-Schmidt A; Department of Clinical Sciences Lund, Orthopedics, Lund University, Lund, Sweden., Castillo H; Developmental-Behavioral Pediatrics, Texas Children's Hospital/Baylor College of Medicine, Houston, TX; and Developmental Medicine, Department of Pediatrics, Children's Nebraska, Omaha, NE, USA., Contepomi S; Argentine Assistive Technology Association, Buenos Aires, Argentina., Locastro MM; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., Koning J; ReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands., Koutsouras G; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., Kutwa E; Maseno University School of Medicine and Surgery, Kisumu, Kenya., Mahorta A; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., MacFarland S; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., Öhrvall AM; Department of Neurobiology, Care Sciences and Society (NVS), Division of Occupational Therapy, Karolinska Institute, Stockholm, Sweden., O'Neill P; ReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands., Overvelde A; ReachAnother Foundation, Bend, OR, USA; Addis Ababa, Ethiopia; and Delft, The Netherlands., Peny-Dahlstrand M; Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, Occupational Therapy Unit, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Shaw A; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., Stockman J; Department of Clinical Sciences Lund, Orthopedics, Lund University, Lund, Sweden.; Centre for Clinical Research Sörmland, Uppsala University, Uppsala, Sweden., Tovar-Spinoza Z; Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA., Castillo J; Developmental-Behavioral Pediatrics, Texas Children's Hospital/Baylor College of Medicine, Houston, TX; and Developmental Medicine, Department of Pediatrics, Children's Nebraska, Omaha, NE, USA.
Jazyk: angličtina
Zdroj: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2023; Vol. 16 (4), pp. 657-663.
DOI: 10.3233/PRM-230037
Abstrakt: Purpose: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.
Methods: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.
Results: All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.
Conclusion: The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.
Databáze: MEDLINE
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