The Australian Traumatic Brain Injury Initiative: Single Data Dictionary to Predict Outcome for People With Moderate-Severe Traumatic Brain Injury.

Autor: Fitzgerald M; Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.; Perron Institute for Neurological and Translational Science, Nedlands, Western Australia, Australia., Ponsford JL; School of Psychological Sciences, Monash University, Melbourne, Victoria, Australia.; Monash-Epworth Rehabilitation Research Centre, Epworth Healthcare, Melbourne, Victoria, Australia., Hill R; Regina Hill Effective Consulting Pty. Ltd., Melbourne, Victoria, Australia., Rushworth N; Brain Injury Australia, Sydney, New South Wales, Australia., Kendall E; The Hopkins Centre, Griffith University, Brisbane, Queensland, Australia., Armstrong E; School of Medical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia., Gilroy J; Aboriginal and Torres Strait Islander Research, Faculty of Medicine and Health, The University of Sydney, Sydney New South Wales, Australia., Bullen J; Office of DVCA, Curtin University, Bentley, Western Australia, Australia.; Telethon Kids Institute, West Perth, Western Australia, Australia., Keeves J; Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.; Perron Institute for Neurological and Translational Science, Nedlands, Western Australia, Australia.; School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia., Bagg MK; Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.; Perron Institute for Neurological and Translational Science, Nedlands, Western Australia, Australia.; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia.; School of Health Sciences, University of Notre Dame Australia, Fremantle, Western Australia, Australia., Hellewell SC; Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia.; Perron Institute for Neurological and Translational Science, Nedlands, Western Australia, Australia., Lannin NA; Department of Neuroscience, School of Translational Medicine, Monash University, Melbourne, Victoria, Australia.; Alfred Health, Melbourne, Victoria, Australia., O'Brien TJ; Department of Neuroscience, School of Translational Medicine, Monash University, Melbourne, Victoria, Australia., Cameron PA; School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.; National Trauma Research Institute, Melbourne, Victoria, Australia.; Emergency and Trauma Centre, The Alfred Hospital, Melbourne, Victoria, Australia., Cooper DJ; School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.; Australian and New Zealand Intensive Care Research Centre, Monash University, Melbourne, Victoria, Australia.; Department of Intensive Care and Hyperbaric Medicine, The Alfred Hospital, Melbourne, Victoria, Australia., Gabbe BJ; School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.; Health Data Research UK, Swansea University Medical School, Swansea University, Singleton Park, United Kingdom.
Jazyk: angličtina
Zdroj: Journal of neurotrauma [J Neurotrauma] 2024 Apr 03. Date of Electronic Publication: 2024 Apr 03.
DOI: 10.1089/neu.2023.0467
Abstrakt: In this series of eight articles, the Australian Traumatic Brain Injury Initiative (AUS-TBI) consortium describes the Australian approach used to select the common data elements collected acutely that have been shown to predict outcome following moderate-severe traumatic brain injury (TBI) across the lifespan. This article presents the unified single data dictionary, together with additional measures chosen to facilitate comparative effectiveness research and data linkage. Consultations with the AUS-TBI Lived Experience Expert Group provided insights on the merits and considerations regarding data elements for some of the study areas, as well as more general principles to guide the collection of data and the selection of meaningful measures. These are presented as a series of guiding principles and themes. The AUS-TBI Aboriginal and Torres Strait Islander Advisory Group identified a number of key points and considerations for the project approach specific to Aboriginal and Torres Strait Islander peoples, including key issues of data sovereignty and community involvement. These are outlined in the form of principles to guide selection of appropriate methodologies, data management, and governance. Implementation of the AUS-TBI approach aims to maximize ongoing data collection and linkage, to facilitate personalization of care and improved outcomes for people who experience moderate-severe TBI.
Databáze: MEDLINE