Meaning in Life in Late-Stage Parkinson's Disease: Results from the Care of Late-Stage Parkinsonism Study (CLaSP) in Six European Countries.

Autor: Bublitz SK; Institute of Palliative Care, Paracelsus Medical University in Salzburg, Strubergasse 21, 5020, Salzburg, Austria. sarah.bublitz@pmu.ac.at.; Krankenhaus Agatharied, Norbert-Kerkel - Platz, 83734, Hausham, Germany. sarah.bublitz@pmu.ac.at., Brandstötter C; Institute of Palliative Care, Paracelsus Medical University in Salzburg, Strubergasse 21, 5020, Salzburg, Austria., Fegg M; Psychotherapeutic Practice, Munich, Germany., Ferreira JJ; Faculty of Medicine, Molecular Medicine Institute, The University of Lisbon, Lisbon, Portugal., Odin P; Division of Neurology, Department of Clinical Sciences, Lund University, Skane University Hospital, Lund, Sweden., Bloem BR; Department of Neurology, Centre of Expertise for Parkinson and Movement Disorders, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Centre, Nijmegen, The Netherlands., Meissner WG; CHU Bordeaux, Service de Neurologie des Maladies Neurodégénératives, IMNc, CRMR AMS, NS-Park/FCRIN Network, 33000, Bordeaux, France.; Univ. Bordeaux, CNRS, IMN, UMR5293, 33000, Bordeaux, France.; Department Medicine, University of Otago, Christchurch, and New Zealand Brain Research Institute, Christchurch, New Zealand., Dodel R; Department of Geriatric Medicine, University Hospital Essen, Essen, Germany., Schrag A; Queen Square Institute of Neurology, University College London, London, UK., Lorenzl S; Institute of Palliative Care, Paracelsus Medical University in Salzburg, Strubergasse 21, 5020, Salzburg, Austria.; Krankenhaus Agatharied, Norbert-Kerkel - Platz, 83734, Hausham, Germany.; Interdisciplinary Center for Palliative Medicine and Clinic for Neurology, University of Munich, Munich, Germany.
Jazyk: angličtina
Zdroj: Journal of religion and health [J Relig Health] 2024 Jun; Vol. 63 (3), pp. 2140-2154. Date of Electronic Publication: 2023 Dec 05.
DOI: 10.1007/s10943-023-01962-w
Abstrakt: The Care of Late-Stage Parkinsonism (CLaSP) study is a longitudinal, multicentre, prospective cohort study to assess the needs and provision of care for people with late-stage Parkinson's disease and their caregivers in six European countries. As a cross-sectional study within the CLaSP study, 509 people with Parkinson's disease completed the "Schedule-for-Meaning-in-Life-Evaluation" (SMiLE) questionnaire. We compared the results to those of a representative sample of healthy participants (n = 856). People with late-stage Parkinson's disease reported family, partnership and spirituality as the greatest areas of importance. Overall, they had lower SMiLE indices compared to healthy participants. People with late-stage Parkinson's disease rated the importance of core meaning in life areas (namely family, social relations and health) as significantly lower than the representative cohort and they also rated satisfaction as significantly lower in most areas. In conclusion, people with late-stage Parkinson's disease do have areas where they can find meaning, such as family, partnership and spirituality. However, they indicate a lack of fulfilment of their individual MiL, reflected by low satisfaction rates in the majority of meaning in life categories. The need for spiritual support for people with Parkinson's disease indicates the important role of chaplains to help people with Parkinson's disease maintain meaning in life.
(© 2023. The Author(s).)
Databáze: MEDLINE
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