| Autor: |
Mendieta CV; PhD Program in Clinical Epidemiology, Department of Clinical Epidemiology and Biostatistics, Faculty of Medicine, Pontificia Universidad Javeriana, Bogota 110231, Colombia.; Department of Nutrition and Biochemistry, Faculty of Sciences, Pontificia Universidad Javeriana, Bogota 110231, Colombia., de Vries E; Department of Clinical Epidemiology and Biostatistics, Pontificia Universidad Javeriana, Bogotá 110231, Colombia., Calvache JA; Department of Anesthesiology, Universidad del Cauca, Popayan 760032, Colombia., Ahmedzai SH; Medical School, The University of Sheffield, Beech Hill Road, Sheffield S10 2RX, UK., Prue G; Medical Biology Centre, School of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK., McConnell T; Medical Biology Centre, School of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK., Reid J; Medical Biology Centre, School of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, UK. |
| Abstrakt: |
In Colombia, timely access to palliative care (PC) is hampered by difficulties in identifying and referring to necessary services. The SPARC (Sheffield Profile for Assessment and Referral for Care) instrument provides a holistic needs assessment to improve referrals for different forms of care. SPARC was recently validated in Colombian Spanish (SPARC-Sp) but has not yet been implemented in clinical practice. We undertook workshops that aimed to co-design an implementation strategy to inform a future trial testing SPARC-Sp in the Colombian healthcare system. Workshop attendees included patients, informal caregivers, healthcare professionals, volunteers, administrative staff and decision makers. Discussions within the workshops refined implementation and dissemination strategies for SPARC-Sp in practical scenarios. Results include the need for education, clarification and demystification of PC and the lack of time and skills of professionals to identify patients' needs. Attendees recognized SPARC-Sp as a valuable tool for highlighting patients' concerns, whose adaptations are needed in Colombia to address the low literacy of the population and specificities of the healthcare system. We proposed local adaptations to SPARC-Sp and produced five educational videos aimed at health professionals, patients and caregivers to strengthen understanding of holistic needs in PC while building a strategy for SPARC-Sp implementation in the Colombian context. |
