Accentuating patient values in shared decision-making: A mixed methods development of an online value clarification tool and communication training in the context of early phase clinical cancer trials.

Autor: van Gurp JLP; Department of IQ Healthcare, Radboud University Medical Centre, Nijmegen, the Netherlands. Electronic address: Jelle.vanGurp@radboudumc.nl., van Lent LGG; Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Centre, Rotterdam, the Netherlands., Stoel N; Department of Pain, Anesthesiology and Palliative Care, Radboud University Medical Centre, Nijmegen, the Netherlands., van der Rijt CCD; Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical Centre, Rotterdam, the Netherlands., van Weert JCM; Department of Communication Science, Amsterdam School of Communication Research/ASCoR, University of Amsterdam, Amsterdam, the Netherlands., Hasselaar J; Department of Pain, Anesthesiology and Palliative Care, Radboud University Medical Centre, Nijmegen, the Netherlands.
Jazyk: angličtina
Zdroj: Patient education and counseling [Patient Educ Couns] 2024 Feb; Vol. 119, pp. 108075. Date of Electronic Publication: 2023 Nov 16.
DOI: 10.1016/j.pec.2023.108075
Abstrakt: Objective: In the shared decision-making (SDM) process for potential early phase clinical cancer trial participation, value clarification is highly recommended. However, exploration and discussion of patient values between patients and oncologists remains limited. This study aims to develop an SDM-supportive intervention, consisting of a preparatory online value clarification tool (OnVaCT) and a communication training.
Methods: The OnVaCT intervention was developed and pilot-tested by combining theoretical notions on value clarification, with interview studies with patients and oncologists, focus groups with patient representatives and oncologists, and think aloud sessions with patients, following the Medical Research Council (MRC) framework for complex interventions. These human-centered methodologies enabled a user-centered approach at every step of the development process of the intervention.
Results: This study shows relevant patient values and oncologists' perspectives on value exploration and discussion in daily practice. This has been combined with theoretical considerations into the creation of characters based on real-life experiences of patients in the OnVaCT, and how the tool is combined with a communication training for oncologists to improve SDM.
Competing Interests: Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Carin van de Rijt reports financial support was provided by Dutch Cancer Society.
(Copyright © 2023 The Authors. Published by Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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