Transition from Paediatric to adult health services: Aspirations and practices of human flourishing.

Autor: Padley N; Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, QC, Canada., Moubayed D; Département de pédiatrie (section médecine de l'adolescence), Centre Hospitalier Universitaire Sainte-Justine, Montréal, Québec, Canada.; Département de médecine, Université de Montréal, Montréal, QC, Canada., Lanteigne A; Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, QC, Canada., Ouimet F; Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, QC, Canada., Clermont MJ; Département de pédiatrie, CHU Sainte-Justine, Montréal, Québec, Canada.; Département de pédiatrie, Université de Montréal, Montréal, QC, Canada., Fournier A; Département de pédiatrie (section médecine de l'adolescence), Centre Hospitalier Universitaire Sainte-Justine, Montréal, Québec, Canada., Racine E; Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, QC, Canada.; Département de médecine, Université de Montréal, Montréal, QC, Canada.; Département de médecine sociale et préventive, École de santé publique de l'Université de Montréal, Montréal, QC, Canada.; Department of Medicine (Division of Experimental Medicine), McGill University, Montréal, QC, Canada.; Department of Neurology and Neurosurgery, McGill University, 3801 Rue University, Montréal, QC, Canada.
Jazyk: angličtina
Zdroj: International journal of qualitative studies on health and well-being [Int J Qual Stud Health Well-being] 2023 Dec; Vol. 18 (1), pp. 2278904. Date of Electronic Publication: 2023 Nov 23.
DOI: 10.1080/17482631.2023.2278904
Abstrakt: Background: Transition from paediatric to adult care is challenging for youths with a chronic condition. Most transition programmes place high value in autonomy and independence. We undertook a qualitative study to: (1) identify the needs and aspirations of youths and (2) better understand the well-being and flourishing of youths.
Methods: Semi-structured interviews were conducted with youths, parents of youths and healthcare professionals recruited from four clinics. Thematic analysis focused on: (1) perceptions of transition; (2) key aspects of human flourishing during transition; and (3) salient concerns with respect to the transition and dimensions of human flourishing.
Results: 54 interviews were conducted. Perceptions of transition clustered around: (1) apprehension about adult care; (2) lack of clarity about the transition process; (3) emotional attachment to paediatric healthcare professionals; (4) the significance of the coinciding transition into adulthood. Fourteen salient concerns (e.g., Knowledge and information about the transition, Parental involvement in healthcare) were identified with corresponding recommendations. Salient concerns related to important dimensions of human flourishing (e.g., environmental mastery, autonomy).
Discussion and Conclusion: The flourishing of youths is affected by suboptimal transition practices. We discuss the implications of our findings for environmental mastery, contextual autonomy, and the holistic and humanistic aspects of transition.
Databáze: MEDLINE
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